I just read all your messages, it seems we are all in the same boat. Unbelievable isn't it that despite our tremendous pain and struggling with our daily task, unlike cancer or stroke, the health care professional sometimes have not got the understanding of our state of life, I find some time that our condition is significantly effected our Quality of Life? I am so pleased that majority of your condition can be managed by the drugs, unlike me, I have been given every thing from Tramadol, Topiramate, morphine on highest doses, but after so many years your body got immune with it and that just not helping, but I read on some website where they said that Fibromyalgya can be treated..., some of it by changing your life style (diet, exercise, taking mineral supplement) and a friend of mine who use to suffer badly advised me what she is taking , such as: ginger tablet; selenium, magnesium spray and vit D.., I talked to my gp about it.., but obviously he has no knowledge on those, but said to me: if that is helpful..take it..because it is a nature products they will not have side effect. I am now a housebound, but after taking all the supplements, I feel that my pain have reduce, I am coping a bit better, I can walk slowly, I have a better energy.., the sad thing is that NHS will not reimburse what I bought and they are quite pricy.
Have anyone try acupuncture at all, if you are, does it help?
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B2WC
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Sorry to hear you are so badly affected by the Fibro and nothing much is helping. I have had acupuncture for the last four weeks, though originally I was referred because of the arthritis on my upper spine and not for fibro. I do find it helps with the pain. I'm not overly sure whether that's because it actually helps as acupuncture or if it's because it's the only half hour in my week that I actually get to relax in a peaceful environment! (I'm a working, single mum of two) But I will try anything in the vain attempt to continue a relatively normal, reasonably pain-free life, whatever that may be! I have also had a couple of sessions of gentle massage which are good for relaxation if nothing else
It can't harm to try. Keep me posted how you get on.
I agree with you with the complete lack of knowledge or acceptance of some health professionals regarding Fibro. I've felt like a fraud at points over the last year or so!
I've had acupuncture for Fibro from physiotherapists, they are taught a limited range of points. I had one physio who was quite scatty with whom I got no benefit. The other was a calm meditator and it was relaxing. Personally I feel it only has short term symptomatic effect, maybe just placebo.
Yeah iv had acupuncture in my arms it made me sore but forces the muscles to relax which is a good thing. I paid private for mine bit iv also paid for all my physio private as I think the nhs physio is rubbish... But half an hour with a private physio is well worth it in the end.. I need another set of Physio but money is making me hold off.
Oh I wish us fibro folks could all move to a hot country and just lay around a pool all day and have daily rubs! Oh and have a cook on hand so we don't have to cook hahahahahah wishful thinking
Thank you for your info, I know its tough though, but however surely we have to go on, I am wondering if some of the information that I have read on the website true, like if you try to do gentle exercise as well as eating proper food and combining with mineral supplement our FM will be cured, have you ever read that website, so I have been taking some supplement for 2 weeks now, I am still in pain, but I have more energy than before
I am so sorry to read that most things have not helped your Fibro and I sincerely hope that you can find some resolution to your pain. I have undergone acupuncture but sadly it did not hep me at all. I want to genuinely wish you all the best of luck.
Thank you Ken, have you ever read on the website that they said FM can be cured by changing a lifestyle and adding up mineral such as: sellenium, Magnesium and Vit D and Q10?
No I have not read that? My GP says it can greatly help reduce my symptoms and I do my daily physio without fail. I already have a Vit D supplement to accompany Alendronic Acid as I have Osteoporosis.
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Not depressed - VERY fit- but in pain?
Phantom Pain
joint pain, back pain , 
BBC 1 Dr in the House - Reduction in symptoms NOT a cure!
Is your pain worse at night?
