I am trying to accept who I am and am struggling to be honest.
I have spent years fighting for help and support to be diagnosed almost 10 yrs later with Endometriosis and Adenomyosis.
This took me a while to accept that I have these conditions. Having a laparoscopy to find them helped ease my burden slightly as it gave me proper answers, proof that I wasn't lying.
Now I have been recently diagnosed with Fibromyalgia.
It makes sense as I am in constant pain, fatigue, concentration problems etc. Yet I still can't accept it.
My mental health is shot and having this new diagnosis isn't helping me.
I'm not working at current due to my health conditions/ issues and part of me is scared this is now me.
I'm scared of loosing my identity.
I seem to be the girl with problems.
Just needed to get this off my chest.
Thanks for listening (well reading) 🙂
Written by
Rwby_Rose
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Hey I also have endometriosis and adenomyosis with fibromyalgia, and a couple of other conditions. It’s affected my life so much. It’s been a physical and mentally draining battle. I have been treated very unfairly by employers and also some friends.
I’m so sorry you are dealing with all these painful health issues.
My daughter, who won’t mind me telling her story, has/had severe Endo and adeno pain which was totally debilitating for over 4 years and fought for a hysterectomy at 27, which has made such a massive difference to her life. But I cared for her through the worst and I know the battle you are currently going through and I extend my heart to you and any other lady going through the same.
I hope that you can accept that it doesn’t define you as a person and that the best people will be those that are still there for you.
Endometriosis UK have mentors and details of groups you can contact and is a great resource to get in touch with. And they also will help with what help you should be expecting and receive from the NHS.
Hi lovely. I felt compelled to reply as I can completely understand and relate. I caught covid in 2021 and just never recovered. I have the equivalent to ME/CFS even though I'm diagnosed with long covid and fibro but my life has been extremely difficult since. I've completely lost my identity & have major struggles with accepting that this is my life. I am older then you, I'm 38. I used to be a photographer as well as work part time in the hospital. I struggle just to do the 16 hours a week and I'm currently off with exacerbated symptoms which have been increased for a while. Barely pick up my camera nowadays which used to bring me so much joy. Anyway my point is I know the struggle. It's so hard isn't it 😞 snd I'm so sorry you're going through this too. I'm also the girl with problems and I can barely even get sympathy/support from my own mum who has practically been my best friend my whole life. If you can just do whatever you need to keep yourself afloat. Keep on at your GP for support. Get support from friends. Look online at sites that will recommend places of support. Try some counselling? I hope things improve for you. Feel free anytime to message me. It's hard to accept this stuff and I'm yet to do it also but I think it shows your strength. You're still you babe. Just takes a while to adjust to new limitations but I'm sure you can do this. We all can. We just need a little help along the way.
Sometimes the things that you find joyful just fall into your lap. Mine happened as I was watching a YouTube video about a guy doing photography and talking about his settings and editing, and it just set a fire in me that is still yet to fade haha. Same as years ago my son wanted a bird, went on & on & on about it & I eventually gave in. Well that bird became my bird, which has led to the last 5 years of me being passionate about owning birds (I highly recommend as a pet if someone likes animals!). Don't worry you'll find something when you probably least expect it. If you do something on a good day, try do something you don't usually do & that's usually how you find an extra passion!
Hope you're feeling a little better then when you last posted 🙏. Always here to chat if you ever wanted. I'm a misery but I'm also funny 🤣.
I joined because I really sank so low it was scary and I just had no idea where i was going or what I was doing,Touching the very bottom of what I thought was the absolute end of me,
There are so many people on here who have 'Been there,done that' A Fibro family of warriors, We have to help each other to show we are strong and will fight for what we had and what we have left,
No matter what,we have left we will always as Human beings be able to send one another love and kindness,to be a comfort and a shoulder to cry on,
Once we touch the bottom there is only one direction left, Thank goodness ,
Hello, it makes me very sad for you younger people getting diagnosed and other health issues, I know it’s a struggle as my own daughter has endometriosis, fibro, I think having some time off work gives you time too take a step back , have you got a good support network ?with close family as talking and being supported is important. I see you have spoken too another young member so it’s helpful too chat with someone or younger ladies in the same situation xxxx
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Please advise me how to deal with my Benefit Claim, Please see question below, Thanks to all for any help you can provide.
How were you diagnosed?
Why can I tell people that I am a psychiatric patient without shame but am embarrassed to tell them I suffer from fibromyalgia??????
Do you accept your diagnosis?
trying not to have a panic attack , cry or worry
