Well another lousy day and night, trying to read through all this info for my assessment meeting on Thursday and getting absolutely nowhere - i just can't get my head round it all and panic mode is setting in.
I can see myself getting to this meeting and making a complete fool of myself!!!
Hi morning
I know how you feel about a lousy night, I haven't been able to sleep because of legs and pain.
Sorry I haven't seen or memory.
What meeting are you worrying about?
Trace x
Hi Trace,
I have my PIP medical assessment meeting on Thursday x
Morning.
Oh I know how you are feeling, I had mine in July.
Please try not to let it get to you, I know easier said than done.
Everyone says different things, are you taking someone with you?
Trace x
Yes a friend but i have the feeling that something is going to come up on the day that will prevent her from coming - if you know what i mean! How did urs go?
Hi
Well I didn't have a good time, the man wasn't nice,and my husband had to ask him if he knew anything about fibromyalgia, as he asked what doctors were doing to cure my fibromyalgia.
It's not as bad as I thought, just read through my form and asked me some questions.
My doctor told me not to take my pain meds that morning so they could see how much pain I was in.
Even wearing make up, can go against you.
Just remember to answer questions as if it was on your bad days.
When I left I said to my oh oh well I won't be getting that, but I was wrong, I thought I was going to have to appeal.
What part are you worried about?
Trace xxx
All of it really!!!!
All fo it!!!!
Oh bless
Do you mind me asking what part of the country are you from?
Trace xxx
No not at all, i'm in Slough, Berkshire.
Where abouts are you?
Sorry about not answering for ages, had to rush out.
I am in Portsmouth.
Please don't worry about Thursday its not worth it.
Trace x
Please have a days rest from the paper work, I can honestly say that i felt the same before my assessment and i remember feeling like screaming with fear of what was going to happen at the assessment.
You wont be alone at your assessment just imagine all your friends from fibro are in the room with you it might feel a little crowded but were all be there with you.
My only advice is to be yourself answer the questions honestly and remember when its all over your feel so very proud of yourself..
Good luck and you wont make a fool of yourself, i'm sending you a big soft hug filled with courage xxx
Thanks Bren, your a star!!
I live in states now admittedly it has been years. I did make a fool of myself! Couldn't remember answers to half the questions during test blacked out and nearly fell through a window then I went to set down missed the chair hit the floor banged my head on the chair then just lost I started laughing so hard When asked why I was laughing I said because if I don't laugh I am going to start crying and never stop at this point I was asked if I was under the care of a psychologist which made me laugh harder because I was! Oh yea mine was bad from the time I got there till time I left. Of course they denied me I got a representative and he went back through all the paperwork and talked to them less than 3 months later I had mine. He said it should have been granted because mine was soooo bad! So just keep that in mind. Sometimes the worse it is the better it is for you
Fingers crossed for you
Just be yourself ' if you can't answer that's just fibro foggy brain and part of you ... so try not to worry.
X
I had a very nice nurse practitioner for my assessment. I really feel sometimes some of them are going to pay out of their own pocket. I have a very good friend who helped me before I got pip. If I had to pay then, I don't know how I would have managed, so please don't put on a brave face, tell them as it is. Good luck
Had pip assessment yesterday, had stressed about it for a week, honestly don't panic I did same as others no make up, didn't take full meds that morning felt terrible and probably looked even worse, I asked what experience she had of working with fibro patients she never even answered, so I take it from that she knew very little, was more interested in keep asking me who I see and what for and how often, I gave her the names and phone numbers of 2specialists, the physio and GP!
sending you all the best xx
Hi Shaz, thank you for the reply - did they examine you or ask you to do anything?
I am so genuinely sorry to read that you are having such a rough time and I want to gneuinely and sincerely wish you all the best of luck with your assessment.
All my hopes and dreams for you
Ken
Another Bad Night
Having a bad flu feeling night... 
Very bad time at moment sick of pain, sleepless nights , 
Tingling and numbness in my fingers soooooo bad at night.
Bad
