Most painful day yet...

[Starrie]

Hi everyone....

I haven't posted on here before.... But at the moment I am coming off gabapentin and slowly going onto pregabalin. It's been rough so far but I just need to know if anyone found this really hard? I've had the worst day since going on medication today... Today I struggled to get out of bed... Then I ate and fell asleep in a chair, woke up, moves to the bed. Woke up and attempted to get food, got some lunch very very slowwwly, ate that and then collapsed into bed AGAIN and slept until my meds alarm woke me up at 8pm and thankfully my hubby was home from work and was helping me... I just, well, he doesn't understand. Has anyone else had days like this and how long will it go on? Before I was on medication it would last a few days... And I just HATE it because I feel like I've lost days on end and I miss things so at the mo there is literally no christmas planning, present or food and everyone is coming to us!!!

I am so sorry I just need some reassurance... I know one person I used to work with who has recently been diagnosed and she has no where near the bad symptoms that I have... She doesn't understand either saying "oh well I have it worse, I had a useless operation before they realised" but what she doesn't remember is that I've had it undiagnosed for 6 years, and she 2. Plus she was told by several doctors she didn't need the operation!! And so she jumped from dr to dr until one gave it to her!!! Meh..

Sorry this rant has gone on very long

Starrie x

[TheAuthor]

Hi Starrie

Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you are feeling as well as you possibly can be today? I genuinely hope that you find the forum useful, informative and loads of fun!

I have pasted you a link below to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information: fmauk.org/

I have found that Fibro is unique to every sufferer, and what one ails with, another may not, so it is impossible to say that somebody is putting things on, or they are not as ill as another. We are all unique individuals and this applies to our reaction to our medication as well. As what may work for one person may not work for another, so it is all trial and error with drug treatments. So in reality your friend cannot judge your experiences of Fibro by her own!

I currently take take Pregabalin but I have never taken Gabapentin, but I also have Nortriptyline. So again, this is different from your experience. I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Gailj]

Morning, sorry to learn of your awful intro to Pregabalin.

My GP thought I'd be better on Pregabalin rather than Gabapentin, sadly I didn't continue with it, my head was in lala land, I felt very confused and for a reasonably bright person, that's hard to accept. I can't say there was any difference with the pain, I really didn't think it was for me so I reduced it and went back on Gabapentin.

It's difficult for people to understand the intricacies of Fibro as they manifest so differently for us all.

I do hope you find a happy medium with your meds and reach some quality of life.

I'm sending a huge hug 😊

[walterhollis]

hi ya starrie,your question about pregablin,im on 100 mil capsules,been on them for about 6 yrs,at first i had a bad time of it,same as the sleeping problem and they still do that to me one min im awake and then sit down to relax as the pains are bloody awlfull then bam asleep but i can function most off the time as long as i do something to occupy my self with every day things,the pills do give me release of the awlfull pain symdrome,i suffer pains all over my body,every hour of the day and the spasm are so intense, but with out the pregablin i would,nt beable to function ,the gp has increased my dose to 6 caps a day,so you can emagin im flying high when i take the last dose before bed,hope this helps,so hope the pains are not to bad for you,have a good day.and the best shane a new usesr

[Starrie in reply to walterhollis]

thanks :] its good to know that i am not alone nor am i the only one suffering that effect!