Went to bed last night at 2:20pm and have been up since, I can't remember the last time
I had a decent nights sleep, the fibromyalgia and the CFS is killing me .... Sorry I'm hoping it will, had an MRI on my back and as well as bulging discs it's not good.
They have offered me an operation to try to repair some of the problems but to be honest I've had enough ops in my life, the brain fog is terrible, I have trouble remembering what I did yesterday and struggle to concentrate during conversations. And keep asking people to repeat themselves. It leaves you feeling so stupid.with the pain most days I don't know weather to stand,lie down or sit there's no place.
Sorry I just needed to have a rant as I feel I'm losing the plot lol
I hope you're all having a better time than me. Gentle hugs xx
Tracy
Written by
tracypom
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I suffer with neuro pain and am all too familiar with your trials. I read in one of your previous posts that you were having difficulty convincing someone of the truth of your pain. It is so important that friends & family understand your pain. Unlike other illnesses you cannot see pain, so there will always be doubters.
I'm quite lucky that I have a fantastic family and good friends that support me, my doctor is also amazing and so understanding, it's people who don't know me I have problems with, as I'm sure we all do.
I think you have done the very best thing to come here and have a rant, we all know the need to do so at times and I for one certainly understand that.
I too have back problems, but luckily so far not ones that need a large operation, I've had compression fractures of my lower spine and I know how it feels to not have anywhere or any way of feeling comfortable, each thing causes its own problem, more pain or for me, spawning, so you have my deepest and sincere sympathy.
Like you I also have huge brain fog (hence my name !) and again like you find myself loosing track in conversations, not just once, but regularly. I am lucky that a lot of my friends know and understand and when I'm in mid flow of a sentence and then suddenly stop and say "what was I talking about" as all memory has vanished, they kindly put me back on the right track, but when I'm with people I don't know, they look at me as if I'm half mad, and often I have to make my excuses and leave as I'm so embarrassed.
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Just feeling down!!
Feeling 😢
feeling alone
