At last diagnosis

After 5 long years finally got fibromyalgia diagnosis and waiting for rheumy appointment

[seren1970]

So pleased you finally got some answers x

[stumpedok]

Hi...can I ask who gave you the diagnosis if not a Rheumy? How many tender points out of 18 did you have? Glad things are starting to make sense for you but sorry you have this horrible illness......I wouldn't wish it on anyone.

[Fibrofoggiest in reply to stumpedok]

Hi stumpedok,

Rheumies are not the only people able to diagnose Fibro by the trigger point test. My GP is very thorough as was my osteopath and both had found reactions in 16 out of the 18. I was then sent to a rheumatologist who said that if my GP had responses like that he didn't even need to do further testing but was helpful in instigating my initial treatment programme. It must be said though that over 25 year earlier I'd had a diagnosis of Fibrositis from my GP and thus had actually had all the symptoms and rubbish for that length of time. Having learned that put so many things into perspective and at long last I knew I wasn't going mad, which I really was beginning to think was the case with back to back migraines, exhaustion, etc., etc., etc. !!

Foggy x

[stumpedok in reply to Fibrofoggiest]

Hi Foggy.....what a long time to worry yourself in that way...no wonder your relief was huge when Fibro was diagnosed....how long ago was that? As far as I know the term Fibromyalgia only came into use in about 1990, I think and Fibrositis was the typical term used before that so I think there are probably quite a few people from that era with similar confused early diagnostic pictures. I'm just glad it's got easier generally now.

As to your 'correction' of what i said I've rechecked my earlier comment and I didn't say anywhere that only Rheumys could do the 18 tender point test so there wasn't any need for correction on that score! Lol.

However I am aware from reading around that one of the reasons why professionals altered the diagnostic criteria of Fibro from the early sole reliance on the 18 tender point test to include other aspects was because of professional concern over the reliability of the test eg because of differing individual pain thresholds and differences in the pressure applied by clinicians doing the test etc. Glad you have a GP you trust. All best.

[Fibrofoggiest in reply to stumpedok]

Hi stumpedok,

I'm surprised you took my post as a "correction", it certainly wasn't written as such, purely a comment !!

Foggy

[stumpedok in reply to Fibrofoggiest]

It was what it was! I'm conscious this is lozzer1's post so don't want to clog it up with our 'differences' any further lol! Nuff said now.

[Fibrofoggiest in reply to stumpedok]

I didn't think we had any differences ....c'est la vie 😊

[Fibrofoggiest]

Hi lozzer,

I'm so pleased that after all this time you have now got clarification and are heading in the right direction. That having been said, it's never nice to receive the fibro diagnosis as I wouldn't wish it on anyone! You have certainly come to the right place to receive the support and understanding you need, from people who have been through very much the same thing as you.

I'm sending lost of positive healing vibes your way and look forward to getting to know you better around the forum. 😀

Foggy x

[Hidden]

Thanks to you all my go agreed with me on the diagnosis its what I thought my blood results were all negative I am relieved yet saddened by fibro I have pain everyday with ibs and also in feet buttocks knee ankle heel elbow wrist fingers knuckles head face and back along with restless leg headaches any light repetitive action cleaning dishes bath etc is a struggle but I will get there x

[Hidden]

Forgot to mention fibro fog blurred vision dizziness and nausea x

[stumpedok]

Sadly lozzer1 I guess it's 'welcome to the Fibro club'. Hope you can get some welcome relief. Take care.

[TheAuthor]

I am pleased yet saddened for you as this must surely be a two edged sword. At least now you have a diagnosis but it is not a good one. Please take care of yourself.

All my hopes and dreams for you

Ken