Hi, I'm at my wits end... I had a rheumy appointment at the beginning of June after nearly a year of feeling rubbish, aching swollen joints, blurry eyesight etc etc etc (sorry, I bore myself with my own symptoms) (I'd already seen a neuro - won't go into that - I've already posted various stuff about that).
I received a 'review' letter a few days after - basically describing the examination and 'possible' diagnosis of 'fibromyalgia and mixed connective tissue disorder' (something she never said to me during the consultation). I had a ton of blood tests done at the same time and x-rays on my hands and feet.
I've heard nothing since - it's now 13 weeks. I went to my GP last week and she only told me that some of my blood tests were 'borderline lupus, certainly fibro but something else going on' - her words... and sent me away with more painkillers.
I've rung the rheumy's secretary three times and each time been told 'if it were something serious they would have been in touch'!!! and 'there's a letter going out soon'...
So now I've got in touch with PALS to make a formal complaint.
Sorry for the long post but has anybody had any experience of PALS or any suggestions what I should do?
Thanks for listening.