i recently put in for pip went for my face to face with atos ! i have suferd with severe arthritas since i was 14 sent letters from my doctor evidence of phisio evidence of my intcontinance and not being able to walk to far as my knees swell and my left leg gives way they sent me a decision 0 points said i could do everythink for my self i cant even peel a potatoe i try to hoover and have to sit with back pain any advice on what i shud do they dont live with me they dont no the pain i go through i am on morphine tramadol and amatriplin and naproxen for the pain !!

13 Replies

  • I was so sorry to read your post you must ask for a reconsideration I can'

    T believe the decision they have come to with all that iß wording with you. Soft hugs.x😢

  • thank you so much rose x

  • Get citizens advice or other similar agency to help you through the process, hey have a pretty good record on getting daft decisions put right!

  • thankyou clare i am in agony constantly but just because i was able to talk to the lady at pip for 5 minutes i got o points they dont live with me or see what i go through x

  • I am sorry to hear that. Can you get someone to help you appeal that? It sounds like you are having a difficult time of it. Do you have someone that can help you? Hugs I truly hope things work out for you!

  • Hi there,

    I'm so sorry, it sounds like you've been dealt a very rough hand. To my mind there seems no consistent way that the agencies dealing with processing the PIP claims. So many are being turned down who absolutely without doubt should be given PIP. Can I ask if you were previously receiving DLA ? If you were, the rate at which you were awarded it should have been taken into consideration.

    My only bit of very small advice would be to appeal again and perhaps do it in conjunction with the CAB if you have one locally (they are very informed on the best way of getting the right outcome with these matters) or you could ask for someone to act as an advocate for you. Also I hope you've kept a copy of the form that you originally filled in as that will help you a lot in formulating your appeal.

    Sorry not to be of more help, but if you want to PM me, feel free.

    Sending lots of positive vibes your way 😀

    Foggy x

  • I was really skeptical about my pip assessment and came out I of the assessment completely humiliated feeling it was one of the worst experiences of my life. I found out yesterday I am to be awarded the standard mobility and standard pip. After the assessment I thought the officious nurse noting the answers to my questions and often finishing my sentences and putting words in my mouth would have submitted information which did not accurately reflect my condition. I was wrong.

    The best advice I was given is to ask someone from the local carers association, a charity affiliated to the council, to help me fill out the form. I did think I would have managed myself but the questions asked can be interpretated in different ways and I most certainly would not have answered them the way my helper did.

    Whether it's citizens advice or some other agency it is good advice to seek help to fill out form. Also as my me/fibro fluctuates I based my face to face answers on my worst days. I have unfortunately been having a particularly rough period which has lasted for ages and the day of assessment was particularly bad (which in hindsight was a good thing). The questions as you know ask you to base how you feel on average over a period of 3 months. There is not a day goes passed when I don't feel pain like you. It is so hard for people to understand a condition when there is nothing visible to see and when there is so much conflicting information in the media which may cloud their judgement.

    Don't give up. Appeal their decision and don't downgrade how you feel. I am very guilty of telling people I'm fine and just try to cope with everything ..even working full time and taking holidays to keep sick leave down up until very recently when it became unmanageable.

    Gentle hugs to you.. I sincerely Hope you get the help you need and do hope you get the award at the end of it all. You certainly don't need prolonged stress so act quickly and let the professionals do their work 😊

    Take Care J

  • Hi Jax, I work 20 hrs and have had fibro for years now and like you I say im fine, I have an appt on 1st Oct with Rheumatologist im bad at the moment having a flare up, how do I go about getting pip if im working xx

  • Hi reikigirl, it was actually my unison rep who advised me to apply. I would never in a million years thought to do it myself. It is non means tested. I pay for someone to do ironing (not just because I hate it but because after being at work all day I am too exhausted to do anything), for acupuncture and for the days I cannot drive for taxis. My kids do most of my grocery shopping that I don't do online.... It all adds up!!! Unison lady said I should be entitled. I had been off work for a period of time with me/fibro and struggle to pace full time hours. I am now faced with the choice of ill health retirement or moving to another role. My job won't allow me to reduce hours indefinitely unfortunately. The assessor did ask if I worked and I was completely honest with all replies ie full time but struggling. Not sure I mentioned it in application as nothing relevant to bring it up. My work allow me to park near to office to limit walking and have been very patient and understanding. Not sure how long they can keep that up as have been having particular problems for the last two years although suffered for the last 7-10 years. Definitely get help to fill in form if you are going to apply. Good luck jax - ps I do Reiki too - only on myself though!!!

  • Aah thanks Jax, been in work today and feel like crying with the pain, I had a 6 week course of acupuncture a while ago but paid myself, I felt so much better and had more energy, but cant afford it anymore, I will go and see C A B next week see u inthey will help with the forms, thank you so much for your reply xx

  • you should appeal immediately the citizens advice seems i can't spell the last word. c a b. will help you. but you have to be quick. they changed the appeals process so there is another hoop to jump through a mandatory first appeal to the d w p. i have just won my fourth appeal. the atos assessment is a one size fits nobody box ticking exercise to deny the sick and disabled the benefits we paid taxes for. good luck with your appeal.

  • I am so genuinely sorry to read that and I sincerely hope that you can find some resolution and relief to this issue. I would definitely ask for a mandatory reconsideration. I have pasted you a link below to the GOV.UK cache on mandatory reconsideration:

    GOV.UK - mandatory reconsideration


    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you


  • So sorry...as all our friends say go to get help I am using a charity locall to go to Tribunal!

    The adviser can give a different view on questions.

    Having recently lost my mobility car left me stranded ..

    Make sure when going for mandatory consideration you impress SUBJECT to extra written evidence.

    You have 1 month from decision to submit extra evidence.

    DWP did my mandatory consideration without my extra info ! even though they knew extra info to follow....going to Tribunal hey ho

    Lots of hugs we are all with you

You may also like...