Saying hello

Hi everyone. I'm not sure where to start so here goes. I was diagnosed with Fibro a few weeks ago after being passed from pillar to post for years as I'm sure you are all familiar with. As I have Osteoarthritis every ache and pain was put down to 'it will just be the wear and tear'. As that didn't cover the Fibro fog, the lack of sleep, the jumping legs, the aching hands etc etc I eventually saw a rheumy who officially put a name to my condition. I was so relieved that I wasn't about to be carted off to the local asylum that I didn't take in the enormity of the diagnosis and am still coming to terms with Fibro.

I am bowing to your collective experiences for information. I have been put on Amitriptyline. I started on 10mg and have increased the dose by 10mg over the last few weeks and have now reached 70mg which is now giving me a great nights sleep. I am surprised. I also realise that this may not last long. Has anyone had this experience? I can increase up to 100mg. I have to take it early, 5-6pm or I'm not awake in the morning so by 9 my eyes won't stay open. Rock and hard place, but I am getting sleep albeit drug induced.

6 Replies

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  • Hi 🙋 I can relate to your story of diagnosis. It took me 15 yrs to get proper diagnosis, up to 1996 when I changed GP I was called hypochondriac or neurotic.

    Some doctors think the passion we describe is beyond belief. There is usually no"proof" ie xray, scans, etc.

    Anyway you have found a supportive community here. Nice to meet you.

  • Hi MillyPeede, thanks for your reply. I look forward to getting to know my fellow Fibromites. Hope you are having a good day 😀

  • Hi sorebones and welcome. This is a great site full of caring people with a wealth of knowledge on fibro- whom are all in the same boat. Look forward to seeing you around the site. Take care, Mags x

  • Of course, my reply should have said pain...not passion! I used my so called smartphone it has auto correct... which isn't very smart

  • Thank you mattoid-mags. Look forward to joining in discussions

  • I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful, informative and loads of fun!

    I am so genuinely sorry to read of your long term search for a diagnosis and I sincerely hope that you can find some resolution and relief to these issues. I do not take Amitriptyline as I have an alternative called Nortriptyline which does not contain the sedative element.

    If you find that you are struggling on this medication there are quite a few others that you could discuss with your GP or Medical Specialist. Some of these include Gabapentin and Pregabalin. It may also be useful to discuss out-and-out pain killers for when you need a little something extra.

    I have pasted you a link to our parent site, Fibromyalgia Action UK as it holds loads of useful Fibro information:

    Fibromyalgia Action UK Website:

    fmauk.org/

    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

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