Monday morning feeling!

Hi all, first post on here to try and motivate myself on yet another Monday morning when I feel like crap! I have been having endless tests, GP and consultant visits since February of this year and still no official diagnosis although they are swaying towards fibromyalgia as a definite while they continue to query other things . As this nightmare continues I am feeling progressively worse, more pain, less sleep, had to drop hours at work as can't manage a full day anymore and am beginning to struggle with the psychological side due to slow progress in actual answers and docs agreeing on plan of action. Mondays are worst as they represent another week gone without answers and the realisation I still feel as bad as I did last week. Tipped over the edge this Monday with a letter from rheumatologist sending me for more bloods as they FORGOT to test for a full autoimmune profile which was the very thing she sent me for 3 weeks ago! So that's another month wasted. Ok rant over now need to conserve rest of energy to get ready to go to path lab for said blood tests before surviving 4 hours at work. Hopefully next post will be more positive.

5 Replies

  • I do hope it does Suzie:) No wonder you are feeling rubbish, imagine forgeting to test your blood, I thought these people were supposed to be professionals. Sorry if that sounded a bit cruel but I do feel for you. All you want are answers and some kind of closure so you can manage your condition.

    I wish I could do more, we are always here for you to chat to. This site is wonderful and our fellow fibro friends are all very helpful and understanding, so, If you want to rant anytime, pls feel free to do so.

    Sending you soft hugs and positive energy :)

    Take care,


    Elizabeth :) xxxx

  • Hi suzie 1964. trick I've taught myself is to ask myself 'Is my response to this situation helping or hindering?'

    Inevitably I've frequently had to concede that getting frustrated, upset and anxious isn't helping anyone least of all me! Then recognising this i ask myself 'Okay how can I deal more helpfully with this situation? '......from there I check to see if there are any actions I need to take, practically and emotionally. doing this I feel more in control of the situation and this in turn reduces feelings of panic, frustration, anxiety etc. Win win all round!

    As many people have learnt through CBT the way we think about something affects how we feel about it. Instead of seeing all the tests and medical appointments in a negative light you could re frame the situation in your mind eg okay everyone is on the case now so once we have all the results in, things will be clearer. Sometimes we need to check our expectations of medical professionals are realistic......even if you are diagnosed with Fibro much of the management of the condition would be up to you yourself on a daily basis. There is no cure for the condition only symptomatic pain relief though remission does occur in some cases eg see article on fma UK site about original founder of Fibroaction UK charity. In the meantime perhaps time spent educating yourself about Fibro might help you to understand what you are experiencing and clarify in your own mind if you feel it fits the bill. All best.

  • Thanks for replies am up hair done and makeup on ready to face the day. Just need a rest then off to path lab.

    Will be reading all I can to manage the symptoms and think I will gain good support by being on here. Thanks again.

  • Yes Mondays can be the pits and I guess you just feel it is an endless round of tests and whre will it all end. Just think of it as a means to an end and hopefully if they do eliminate this that and the other they will come to a positive conclusion. In one way although it does not seem like it now it is better that they are doing this than the way some people have been diagnosed as just a simple "you have fibro" when we know that it can momic so many different illnesses. often many of us who have multiple illnesses can't decide themselves what symptom goes with what illness.

    Don;t ever apologise on here about getting it all off your chest and not being positive as we all find ourselves overwhelmed at times and the best people to turn to for support and emphathy are people like ourselves who have been through the same.

    Take care of yourself. Keep in touch and let us know how you are doing and what the results of the tests are. Hopefully when this is all over they will be able to give you treatments that help you cope more readily. Get as much rest as you are able. Soft hugs.x

  • Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you are feeling as well as you possibly can be on this Tuesday morning? I genuinely hope that you find the forum useful, informative and loads of fun!

    I am so genuinely sorry to read of how you are suffering and struggling and I sincerely hope that you can get a diagnosis one way or the other.

    All my hopes and dreams for you


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