Understanding: Well it's real hard... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Understanding

kleann0930 profile image
6 Replies

Well it's real hard handling this FM my family doesn't REALLY try to understand me the think I make this up and I am ready to scream my days don't get better each week I get worse I have tried all FDA approved drugs they have. And my dr is trying to manage me

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kleann0930 profile image
kleann0930
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6 Replies
Vivajules profile image
Vivajules

Hi Kleann0930,

I so understand how you feel. Family and some friends think we are just over exaggerating our pain and fatigue. Wish they could spend a day in our shoes.

Hope things get better for you in time. I must agree though I am a lot worse than I was a few months ago.

Not sure if CBT will help as I am considering trying this .

Kinds Regards

Julie x

landslider profile image
landslider

Hi kleann

I am guessing this Fibro is relatively new to you?

I completely understand how you feel. 3 months before I had my diagnosis, I was off work for 5 weeks - could barely walk.

It hurt to stand, hurt to sit, hurt to lie down - it was absolutely awful and my blood tests were normal.

Everybody just seemed to think I was depressed and I was pulling my hair out - nobody could understand the pain I was in.

You just get on with it, try and hide and never really fully talk about it.

Nothing seemed to work for ages and I almost gave up. Took months and lots of visits to my GP to find something that made me feel better.

All I can say is stick with it, you will get there, and please try to talk to your family and the GP.

Saying that, I have never really sat anybody in my life down and told them how I feel - it is just too depressing and I don't want pity.

This Forum is great for spilling all - so spill away dear kleann

Try to find something that makes you feel happy and relaxed - a movie, a jigsaw, a book - anything. For me it is my daft lolloping 2 year old Labrador - never a dull moment hee hee xx

Take care - my thoughts are with you xx

Hi, welcome to the site. have you been onto the main site yet.

If you click on the yellow and black circle it will take you there.

You will find lots of information and helpful advice,

See you around.

Sue :)

Regnofibro1 profile image
Regnofibro1

So sorry this has been so hard for you. Depending on your body sometimes you find the right meds easily. For others it takes awhile. Hopefully you will come up with a answer soon. Meditation and physical therapy may also help. A Tens unit or a EMS unit may also help. Hugs

It's so hard for you I can see that by your post I think the greatest fear for all of us is will it ever end All I can say is try to be happy as you can x

TheAuthor profile image
TheAuthor

I am so genuinely sorry to read that and I sincerely hope that you can find the answers that you so desperately desire and deserve. I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

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