The Lack of Understanding

[Deben]

I spent a long time getting recognition as disabled, and vulnerable, I was granted a special needs tenancy, I was told by my medical carers, both physical and mental, that I had reached a "Plateau" and should maintain my lifestyle, which I have done Pain etc, depression from pain and other illness, I was granted lower rate mobility and higher rate care indefinitely, I have also been on esa, I sent in my form with all information, including my panic attacks if leaving home town etc, I have been told that I have to attend a face to face assessment, this has caused untold distress, pain and panic, why do they do this, also if i lose esa i will not be eligible for special needs bungalow that i live in

[Wobblybobbly]

I'm sorry for you. I don't understand the need for disabled people to be continually harassed and made to explain ourselves. I'm in a similar boat, the distress and panic I feel are overwhelming. Good luck to you, I hope all goes well. Xx

[Deben in reply to Wobblybobbly]

Thank you for your reply, I really can not understand what thewy want, It is perfectly clear in my documents how I am, yet they insist I have a dface to face at 4 o'clock on a Friday afternoon in the city, I am so fckd up mate

[Wobblybobbly in reply to Deben]

I think they hope we'll get fed up with being badgered and having to justify our long term conditions and either kill ourselves or just give in, get any job and fail miserably. It's no fun feeling old before your time because you aren't as active as you should be, the worry of not being able to provide for yourself and having to rely on the state or another person is demeaning, no one would choose to be constantly harassed about their health! I feel helpless and you sound like you are too. It's discrimination but what do we do. Big gentle hug. X

[Greenpeace]

Hi to you Deben & Wobblybobbly ,

I can't really offer you any advice, but I think it is a National disgrace about what is happening to people with Disabilities. I won't say too much as it's against the forum rules to to discuss Politics, or Religion, or to swear.

I knew that this was going on about recalling people with lifetime benefits, but to see in writing how it is making you both have Anxiety and dread, makes it come home to me that this is actually for real. I cannot imagine what you both must be going through.

The one piece of advice that I can give you Deben is please have someone to go with you for support to your face to face. Remember that they will be watching you arrive. Is there any possibility that you could get a Disability Advocate to go with you?

Wobblybobbly, please get someone to help you fill out your forms, CAB for instance, or someone with knowledge of the workings of the DWP. Also if you could get a Disability Advocate.

Please don't despair, you are by far the greater persons than they are. Keep your dignity, and do as they ask.

I can't sleep, that's why I am on my iPad in the small hours.

There will be more people around in the morning, and they will give you more detailed advice.

Keep strong, and don't let them win. Please also keep coming on to the forum, there are a lot of knowledgeable people on here, and the banter gets good sometimes, and you can keep us posted how you're doing.

We have our main website at fmauk.org there's lots of info on there, and I forgot to mention that we have our own Benefits Advisor (Janet ), you'll find her details on our website.

Take care, and hang in there.

GP. 😊😊

[Wobblybobbly in reply to Greenpeace]

Thank you, you're very kind. Xx

[Dionne0208]

I don't get why the need to keep assessing people especially when they have drs reports and enough proof what more do they need, I wish you all the luck with this, my son got pip ongoing without assessment and esa without assessment so they can do it, love and wishes to you xx