Thank you very much to all who have wished me good luck at the docs today.
Well, I have some good news. The 4 days of hell without any pain meds or ssri or diazepam has paid off. My doc is just waiting for the go ahead from the rheumatologist for me to start on methotrexate. If I can't handle that as I know some people just can't take it, then it'll be azathioprine. For the short term it's 30mg MR morphine x 2 daily for the pain. Fluoxetine 20mg daily for the brain zaps etc
Diazepam to assist with the anxiety etc
And I've been taken off pred again and back on hydrocortisone as I am steroid dependent after 18 years of 15-20mg daily of pred for colitis. So no more sweats, having a fan on in bed in the middle of January!! Lol no more anxiety from that no more mood swings. No more aggressive red mist outbursts.
I've started taking them as prescribed and all pain gone except for a little in my feet and hands but doc is starting me on 390mg MR morphine but will adjust if necessary. Brain zaps and tinnitus gone!! Completely!!
Anxiety gone. Self confidence back. Never ever thought it would be this good. Hats off to my GP as he does not dictate. If I go to him with an idea after researching on the Internet he won't push me away saying I'm the Doctor. He will say ok, let's give it a try and come back next week, see how it's gone and make necessary adjustments. Or if it goes badly wrong, he will always fit me in at end of surgery and we try something else. I know some of you will think lucky b****r. I wish I had a doc like that. Just ask him or her. Give them your ideas from tesearch you may have done. If they won't listen, then try to find another who will. That will be hard work. But remember it's YOUR body. You know what works on you and what doesn't. So don't be afraid to stand up and say "no that will do me no good whatsoever" if he or she won't accept that you are entitled to an opinion. Then find one who will. Again, I know I'm extremely lucky to have a GP like that but don't give up.
Once again thank you all for your kind words and just knowing that people were rooting for me made my outlook on the day a hundred times better.
Thank you all