Hi there,got to see my gp and basically been feeling that the buprenorphine and co-codamol hasn't been working, in fact I've been feeling irritable and withdrawal feelings after 4 days on the patch.Discussed this with her and was put on 2x30mg & 2x10mg morphine sulphate twice daily and paracetamol if needed as I'm already on 3000mg gabapentin daily and 20 mg diazepam amongst other meds.
Anyone else been through similar,or any experience of M.S.T for fibro and rhuemo?
Thanks,Leigh 👍
Hi Leighz77 , I'm my opinion MST shouldn't even be given for a headache because it's not going to help it, Lol Just my opinion. Good luck. Peck.🐤
Wow Leigh I,m surprised you can function with all that going in you!!! Are you under the care of a Rheumatologist? There are so many drugs that interact and one will cancel out the strength of another, may I ask how old you are hun? A further visit to you rheumo seems in order and get the pills syphoned down a bit and the timing of them too..Your g.p should pay more attention to your pill load, I know mine are so busy and overloaded with people its not always possible to book a medicine review anymore but you rheumo doc should do this, after all its his field for arthritis and fibro,, have you ever been offered alternative therapies like hydro or acupuncture?
Hey,thanks for the input,I'm 40 in august and have been benzo dependant since a child psych px diazepam at age 15 I was also an addict for 20 years got clean and stayed clean for the last five and a half years,I have had my son living with me for the last 4 years so him and my health are priority now.Sadly I did some damage over the years and long story short,biological chemotherapy brought out the Rhuematoid and everything else earlier in me than it did in my family (Nan,Aunty,Grandfather)so I've had to adjust to the ra,fibro on top of a lot of other illnesses,so far my Rhuematology nurse has px me mtx and leflonumide over two separate tx but to no effect,mtx made me ill and was in bed for 6 months and leflonumide just didn't touch me,I've an appointment with my ra consultant coming up on the 16th as well as bone scans etc,my g.p is great she understands where I've come from and doesn't look down on me for my past either which is half the battle,as for pill load she is working with me on reducing I was on almost 40+ mixed pills daily at one point and now that's down to 30.Im on gabapentin for epilepsy as well as neuropathy so I am as my g.p calls me "a complex case".Also I live in the Cynon Valley which is one of the most deprived areas in the country and this also reflects on the NHS here too.Im waiting for c.o.t help to access help getting out and about and also have a team around the family case worker involved with me because of my son who has major behaviour issues due to asd and ADHD.Life is complicated but things can only get better.As for acupuncture it's def something I'd consider as I paid for my mother to get it done for her frozen shoulder and she swore by it,couldn't thank me enough.Take care,leigh x
well good luck hun, don't take no for an answer with NHS I,ve found in life if I stamp my feet cause a fuss I usually get somewhere- no perks for working for the NHS except to say when I finished last year I had a fantastic rheumo doc at Manch royal (and I was lucky to get on board with him thanks to occ health who fast tracked me to him- that's the only perk I ever had) keep in touch let us know how you progress we are all here for a moan if you need one. xx
Thanks,good to know and I've ran out of walls to bang my head against 😅 Take care and much love,leigh x
Hi Leigh
We all experience Fibro pain to varying degrees. I am guessing that you are in a huge amount of pain all the time.
Yes, I have tried MST and I find that it helps enormously when I just can't cope with the pain any longer.
Many doctors say that MST does not help Fibro pain. Well, it does help me and I know a fair few other people that it helps too.
When you take your first dose just be careful as it can make you feel a bit woozy to start with.
That feeling will wear off after you have been taking it for a week or so.
Wishing you much peace
Lu xx
Pain and anxiety yes,I took my first dose (30mg) last night and then started this morning with 30&10mg dose and will take the same tonight (12hr).Thanks for the wishes,take care and much love,leigh x
Hi Lu if I had a pound for every doc who has told me this and that don't work on fibro I would be so rich.. its an individual trial and error of what suits one and not the other, Ive never been to the length of MST coz when I get a massive flare I take myself to A&E and have been told by the staff there not to hesitate and suffer, they usually transfuse a strong paracetamol (1G) I believe and then I go home if I feel better and can stand from sitting and sit from lying- if I cant they send for an on duty physio to give me some help. Its all there for us its just some people have not been advised, we are not time wasters at A&E we are needy I say!
A&E at my local hospital is a 24 hour affair,I was there with chest pains two years back and ended up with a blanket and a wheelchair for the night,didn't get seen and came home total shambolic waste of time....I have had crunching knees and painful swelling for a while now but really got worse over winter,avoided hospital and yesterday g.p confirmed that it is Crepitus to do with the arthritis and not much can do about it at present. 🤕
Hi Leighz77
I am so genuinely sorry to read this my friend, and I want to sincerely wish you all the best of luck and please take care of yourself my friend.
All my hopes and dreams for you
Ken
Well it's been a few weeks now and I have improved thankfully, my pain was at worse 8-10 outta ten when the patch and codeine were battling it out with each other and now I'm down to a 6 on a really good day to an 8 on a bad and in the morning when I'm due to take next dose. Also seen my Rhuematoid consultant and had a mini mot and x-ray taken of my knees, he confirmed that the cartilage is shot to pieces and that my gp was right in telling me that I have crepitus so when I go for ultrasound on my hands in a week or so we will start a new plan of action on all of the above.
Tramadol interacting with butrans morphine !!!!
is anyone using butran patches for fibro pain 
Gabapentin and weight gain?
Pain Management Clinic
Amazed to find someone who sees me as whole person not symptom.
