Good morning everyone. Well this week has been the hardest i have had for a long while. Yesterday i was at the drs. as i was feeling so ill. I ended up crying in her room. The upshot is my fibro/cfs is kicking my butt big time at the moment. Wednesday i could hardly move with the exhaustion and tiredness. I have not done anything except sit or lay down because my engine had no fuel. It took the dr. (bless her) to make me realise why i was feeling as bad as i was. Damn diseases they take so much away from you.
A friend posted me a photo taken seven years ago at her hubbys fortieth birthday party. It reminded me how much i have lost in that time. Then i only had RA, since then i have had Fibro(four years ago) chronic fatigue syndrome ( two years ago) and just recently i have got Menieres disease as well. I wonder when it will ever end for me. So all i can do at the moment is sit and try to look beautiful ( yee right)
So i hope you are all feeling as well as you can be. Hugs to all who need one.xxx
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sylvi
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I wish you were feeling better! To me the most beautiful people in the world are the ones that are beautiful on the inside! My mom used to tell me that it doesn't matter what is on the outside if the inside is ugly! I have always agreed with that!
So sorry you are having such a bad week. I too am struggling this week. I have Lupus and now I am developing symptoms of Fibro it seems with burning aching stabbing pains all over - and the feeling like you just can't get out of bed! Jeepers it's hard to move some days! I used to have a dx of ME before the dx of Lupus - the fatigue just keeps on draining the life out of you! I know how you feel. Luckily my twin boys are now 16 and able to help round the house and with shopping. My husband is a gem. Do you have helpful friends and family around you? It does help me a lot.
I have a brilliant hubby who would rather i sit all day and let him do the work as it is easier for him than when i overdo it and to be honest he has had to this week. My daughter is helpful when she comes down and is not at work. But i find it a lonely disease despite all the help i get as i can't make people understand what i am going through. I am lucky that hubby is very understanding,but even he says i don't know how you feel and that frustrates him as he can't help me any,yet he helps more than he realises,bless him.xxxxx
Yes ultimately it's hard for people to really 'get' how ill you feel. It's great we now have sites like these, they are such a lifeline in an otherwise lonely existence !
I hobbled round Tesco to get a few essentials with my daughter and was so irritable and snappy with her because my pain was worse than ever yesterday.
It's no better today.
I'm sure my children must be sick and tired of hearing me moan. I try really hard not to, but each flare I have seems to be getting worse and lasting longer.
I've spent my entire adult life in pain.
You do get to the point sometimes when it all feels too much. I feel like that today.
hi my lower back killing me for a long time now the pain shoots down my legs i cry day and night with the pain i have 3 young kids and im so depressed with it
I'm flaring to sucks! The exhaustion is kicking my head in this time. Roll on night time when I can just sit and telly by miserable self and take enough tablets to knock a horse out! HA oh the joys xx x
I am so genuinely sorry to read that you are suffering and struggling so much at this time, and I sincerely hope that you start to feel better soon. I want to genuinely wish you all the best of luck.
Thank you Ken,i am finding that since the dr. told me i was flaring i feel brighter even though it hasn't gone away. I know i have to just sit/lay until it goes away.
Thank you for your lovely words Ken and hugs from me.xxx
Morning Sylvi. Im sorry to hear its rough at the moment of which I can relate so much. Im just going to send gentle hugs and fingers crossed your feeling better soon. Xx
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Can i request to be refered to a specialist
Do you ever feel that no one understands?
Had my 2nd ESA medical today :(!
Hell hath no fury!
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