Hi all, I am from Northern Ireland I was diagnosed with Fibro over twenty years ago and it has taken this long for me to get any help from the dhss, I was in the army when one day I was doing a run and my legs stopped working, I went to the doctor and he said that it was just a strain or a pull, I got to hear that a lot over the next few years.I struggled on in the army for a year or so then one day I was asked to go for an assessment, the poked at me and then asked me to sign a few forms, I was on my way. I went to see my GP at home and he passed me on to a Dr Whitehead who diagnosed me, I was the first man she had met with Fibro (at last I was first in something ) then my life went downhill.
To give a run down I have Fibro the full 20 points I was bed bound for six months at one point, then the bladder went and the IBS struck and to cap it all I was diagnosed as clinically depressed (I was a real joy to be around), I went through the full gambit of tablets pain killers anti depressants etc I even tried st Johns wort not to bad but played havoc on the tum. My main treatment was a loving family and a bloody minded attitude towards what was wrong, though to be honest it won quite a bit of the time, I applied 5 or 6 times for help and was always turned down I had letters from almost everyone but in Northern Ireland the DHSS don't like to help very much, I always got the feeling that they thought that it was their own personal money, I finally managed to get some help 2 years ago (yea),
What am I doing with myself now well I am a mature student at uni and its great the uni is so helpful and there is so much help for disabled students from extra time in exams to financial help I would highly recommend it to all as it helps me focus and lets me feel whole again, if you cant turn in then they try to help by getting you your notes etc, the best thing though is it gets me out.
well I have bored you all with my story, I feel for you all and look on you all as friends, I was once asked at a help group what is the best bit of advice I could give, A loving family good friends a strong painkiller but most of all try to keep you sense of humor, a smile or a laugh is the best painkiller in the world.