Hi, does anyone know of any doctors , that specialised in fibromalgia near me that I can get my amazing GP to refer me too.
I live in Hertfordshire, but near the Essex border in Harlox, Roydon area.
I have been diagnosed with fibro for three years and I have yet to see a doctor that really understands fibro and would be able to look at my pain killers and maybe be able to fine tune them.
The last doctor I saw was a psychiatrist who told me to reduce my fentanyl patch from 37 ( a 12 patch and a 25 mg patch) to 12 mg and take some paracetamol !
Hence after that I broke down completely and was refrerred to our local Crisis Team on Friday. Who have now visited twice and who are bringing there doctor to see me to hopefully change my anti depression meds which I have been on for three years at the same dose. I take escitalopram 20 mg and Quetiapine 150 mg.
I also have just tried fentanyl patches but I didn't get on with them so after a week I gave gone back to MST 50 mg twice aday and Pregabalin 200 mg at night and 100 mg in the morning. I also have ORAMORPH which I take up to four times aday
If anyone can help or know any hospital consultant that might help would be great.
I have now reached the end of the line for me and am now suicidal most of the time.
I am in such pain all of the time, and then for several hours aday the pain is unbearable. I never sleep , I go to bed and fill up pain killers and lots of pillows to support hits of me. Then when I move in my sleep the pain wakes me. I get 2/3 hours a night .
I really don't k now what to do , I am 43 and all I can see is uncontrollable pain for the next 40 odd years and I just can't face it.
please any help would be great