well everyone very upset today went my new doctor yesterday for the second time sense ive been back in washington state now here is doctor that needs to go back to school this guy sit right in front me and says you need to reteach your brain that pain signals it gets are not really pain so i dont panic what does he think im new at this i dont panic when im in pain because im always in pain so once again i must train another doctor to understand that disorder is not reverseable and i need help to control the pain and he say in the same breath that have the worse case of fibro he has ever seen and still sends me home with no hope

6 Replies

  • I have just registered with a new actor and will be able to see him from nxt Friday and I am wondering whether I will have one that believes that fibro is a real illness and that we do need help and understanding. I was fortunate that my doctor who retired and the one who took over did what they could.

    I must admit that the last one had to be retrained a bit as he tried to insist I did not have osteo arthritis in my hips as I could move them too easily until Xrays showed that I had. His whole attitude then changed towards me and from then on he beloved me when I said I was in pain. Hope the retraining goes well.x

  • When I was first diagnosed I returned to my gp and asked him if he believed in fibro. He said it didn't matter what he thinks because in a few years medicine will call the condition something else. He said the diagnosis of fibromyalgia is a semi permanent science. I will take his answer as a no!

    Hope things get better with your new doctor. You have a great opportunity here to teach him all about fibromyalgia from one who knows. Take care. :-)

  • Please lock your posts otherwise you will find your personal information being perused throughout the internet.

    You will also get more replies if you do.

  • Thanks bluebell, how do I lock my replies? I always lock my posts but didn't realise I could lock my replies to unlocked posts. How do I do it? Thanks

  • Sorry for any confusion, I was asking usaredneck to lock her post. Our replies will not be locked until her post is. That is why many members are reluctant to share personal information or advice if a post is unlocked.

    I implore everyone who posts a question or a comment to please lock. If you do not know how to do it or you would like to lock a previous post then please contact admin who will be happy to help.

  • Hi usaredneck

    I am so genuinely sorry to read this and I sincerely hope that you can find some resolution to this issue. I do not know how it works with doctors in the US but I would find a different one who actually knows what they are talking about.

    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you


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