First post. Have been on 20mg of pred for 18 yrs for UC. The UC has now cleared up so my doc wanted me off pred. I was started on hydro cortisone but after about 3 weeks I collapsed into a huge heap. I ached from my neck to my feet so bad the I thought I'd been hit by a bus. Then terrible pain in hands and feet, sounds amplified so loud that I couldn't stand them. The same with bright lights. It was awful and in the end I upped the steroid dose from 30mg to 80mg. Lo and behold pain gone in 3 days. This has now happened about 4 times when I lower the dose of HC. So my doc put me back on pred. I am now also bloody hooked on tramadol and am on a 10 week withdrawal regime. Rheumatologist suggested full blown arthritis where it attacks the whole body or fibro or polymyalgia or CFS. Do those symptoms sound familiar to anyone? The pain in my hands and feet was excruciating. And I was sleeping 12-16 hours a day and had no energy. Now on pred again symptoms gone. Rheumatologist couldn't give me a diagnosis, so I would love to find out what these symptoms mean.