I've wanted to join a Fibromyalgia help group for ages as often I feel so isolated and helpless with this condition. I try to keep positive and manage this most days but on some days get quite miserable with it all! I have been diagnosed with this for a few years but it took ages, as I had to have tests for MS and Parkinson's (as some of the symptoms must be similar). I am under a rheumatologist and now a pain clinic, but to be honest none of them seem to be fibromyalgia specialists with the latest research. They just tell me to go away and 'manage' the symptoms by pacing myself, which I try to do. I do gentle exercise, stretching, pilates (can't do all of it) and gentle gym work so I do try and help myself. I used to love walking but my calf muscles go into the most awful spasms and stop me walking for days sometimes when I try to walk a bit further. I also have dreadful problems sleeping with regard to pain and raging RLS.
What I want to ask is that does anyone know about an actual fibromyalgia specialist and does such a person exist, or would this just be a rheumatologist? This condition seems to be more widely known about now, so surely there must be specialists out there?
Also, with CBD oil being in the news I'm wondering if this will be prescribed for Fibromyalgia in the autumn when,apparently, they may legalise it? I take the one from Holland and Barrett but it is very low dose.