Looks like my immune system is out for revenge after me attempting to control it with methotrexate. I've gone from being poisoned by the drug to now being in a full blown flare. I had a chat with my immune system last night.
"Why are you doing this to me"
"Coz you tried to whack us with metho"
But it hurts, everywhere. And my hands and feet are awful"
" good. Teach not to mess with the IS guys"
"You wait till I get into azathioprine. That'll sort you"
"I hope so"
"Then just try it punk. If you feel lucky."
At which point I regained my sanity and order was resumed.
I had hoped to stay off strong opiates. Just cocodamol or paracetamol. And I am in agony. See doc on Tuesday. I'm not sure if I can put up with this pain till then. It seems that not only has the illness come back but the rebound neuropathy has too. My hands and feet feel like I've got burning broken glass under or in them. The rest of my body feels like I've been hit by a bus. I'm giddy, confused, forgetful, nauseous and my sleep patterns (after just getting back to normal) are all over the place again. 3 hours in the night and no doubt I'll need to go up for a nap soon. I hate this bloody illness. Only started when I came off pred after being on15-20mg for 18 years. That apparently is why all the pain nerves fire in my hands and feet making them an 8-9 on the pain scale of 1-10. It's almost unbearable.
So I've only had it a year but it's awful. Not diagnosed yet but chief suspect CFS.
My adrenal cortex is shot so i have to take hydrocortisone tablets for adrenal support.
This is not fun. In the last 3 weeks I've done cold turkey off morphine as I was fed up with feeling like a zombie. Just got over that, got the toxic reaction to methotrexate. That laid me up until Friday. Then I felt this flare starting. So it means back on zombie tablets again. Until I get the azathioprine. So immune system. "I can't quite remember how many shots I've fired. Maybe 4 maybe 5 maybe 6. I didn't count. But what you've gotta ask yourself immune system is "do I feel lucky? Go ahead punk make my day."
Now it's me hoping azathioprine will stop the pain.
This is how I look and feel this morning.