feeling low

feeling on a low today.,shouldn't be cos beautiful hot sunny day and all i have going round in my head is because of gp s dismissal of my symptoms etc refusal to treat me and lack of support all of which led to this ,the new gp is not going to accept what I tell her either?

[BlueMermaid3]

Hi

I completely understand where you are coming from. I was told by my GP for 20 years that my pain was depression.

Can I suggest that you start a pain diary. You don't need to write much for each day. Just where your pain is, if anything helped etc.

Also take some notes about what you want to talk to your new GP about.

Some GP's don't like to be told what you are suffering from.

You could say that you have done some research and what you believe the problem to be.

Just a few thoughts/ideas. Maybe something to think about?

Hope that helps

Hugs Lu xx

PS I doubt it's any consolation at all but I'm feeling pretty darned low too. The sores on my neck are worse and I have still have no diagnosis as to what they are. The sun aggravates them, so I can't even sit outside

Chin up. Thinking of you x

[Hidden in reply to BlueMermaid3]

Hello Lu,.Thanks for your reply and your suggestions of keeping a diary.i have kept a symptoms diary for the last four years so I have record of when things started and of the doctors comments.I have also written stuff down to discuss with him and nine times out of ten its been thrust back at me without even a glance,i don't know if you read my other post (on AOD)since 2011 i had no support,he dismissed everything i told him.so lost all trust and faith.it was "its your stomach" "im not having anything to do with your stomach(when it wasn't even stomach problem)" ," just accept what you are told"(when i asked perfectly straightforward justifiable questions-like why didn't i get a follow up appointment after gallbladder op.) after I was referred to ENT in 2011 cos had recurring problems of nasal sores ./bleeding and bone growth and all i got told was "its not sinuses" when neither me nor my GP ever said sinuses .i still wake up now with swollen face -notice the bone growth and i wanted something done about it.i have been labelled as obese(based on BMI -tho normal size 12 apart from stomach) ,-noone would accept that my weight gain was not general but abdominal or that i hadn't eaten cakes biscuits puddings etc for years. ,complaining of headaches(persistent head pain)and nothing done cough i had for 2 years was never investigated as weren't swallowing problems.

I started trying to find answers for myself cos they weren't telling me anything and put them to my GP.

everything was "your stomach"and "you ve had scans "but he refused to accept that new things happen after a scan.it was two years later another gp did endoscopy that revealed 4 conditions and he referred me to a specialist to sort out swallowing problems but no mention was made of doing anything to treat these conditions.,i asked my gp was it these conditions that are causing distention or is something causing them.he got narky.it s a question i was asked to ask him.

I ve taken it up with NHS England as im not at fault.waiting for the gp to reply.they have breached guidelines by refusing to treat me and they had no reason to warn me of anything as i hadnt ever been abusive or anything and they cancelled an appointment i had to get test results before i had received notification of their intentions.they should not have removed me from their list until 9th June as confirmed by NHS area team.

i sent NHS England a copy of my "diary" i had kept detailing onset of symptoms,doctors comments/actions and refusal to treat me,and am waiting to see what excuses they come up with.not giving up ,the Gp/patient breakdown was on his part i only ever wanted answers and a diagnosis -not being told "what things are not".unprofessional behaviour also

[jillylin]

Hugs. You never know, your new GP may be more sympathetic.

Hugs

Jillyxx

[Stephrm44]

Having a pretty low day too, so tired, some kindly neighbour's car alarm went off a 4am and stayed on until 6am when someone finally turned it off. Then fell asleep to be woken by the alarm at 6.45am; some how dragged myself out of bed and to work but fighting a headache and could just go to sleep on my laptop. Anyways hugs for all to help you feel better.

Steph

[Hidden]

thanks Guys.

[Regnofibro1]

Sorry to about gp all I can say is keep trying till you find one that is going to listen. It only took me about 15 years and 10 different states to find a gp that will listen😢. Maybe you will get lucky

[Hidden]

hi are you in USA?thats a lot of moving about ?to find a sympathetic gp?

[Hidden]

why do my posts disappear as im writing them

even more low and angry now cos they are blaming me when there things i went to the gp for and ddint even acknowledge them.not givign up

got a letter via email from the gp practice manager .had a quick glance thru and it contains false /incorrect info,mentions things that arent connected as before 2011 when problems started,claims i had an appointment on 3rd june when not possible as they wrote me off on 22nd may,

no mention of gp saying what he had said to me -or of his unprofessional behaviour,threw things back in my face when i tried to discuss them etc.

sent it to NHS england who probably got their own copy,

#going to reply cos i am not to blame

[Fibrofoggiest in reply to Hidden]

How are the dogs doing ? Are you still able to take them out ?? 😃. I do hope so 😀😀

[Hidden in reply to Fibrofoggiest]

Hi Foggy

they are ok.eldest one is now 13.5 and very slow,though he can still have a little run and goes for a fairly long walk.he likes to sleep in the garden especially on days like today tho I don't let him out there in the afternoon sun

annie is almost 8(august).trying to get her to lose weight (not her fault-its the steroids shes on.

they get a walk in the morning and a short walk mid afternoon,then if im up to it give Annie a walk in the evening to try and lose some of her excess weight. me and Buster plod along at his slow pace and Annie is forever pulling to chase something.its hard for me cos of pain,some days I can barely walk

[Hidden in reply to Fibrofoggiest]

Hi Foggy.seeing as you asked how dogs were.thought i'd update you on Annie.for few years now she has had what vets say is a "seasonal allergy".they give her antibiotics and steroids,up until this year she s been ok on steroids but now she has gained a lot of weight(2,6 kgs) just being on them.I have tried her on tailored food for her weight and skin condition to no avail.so cut her food down and try and give her an extra walk if I am up to it,she still scavenges whenever she can and has a quite depraved appetite when out and will devour anything she finds.

[rosewine]

I think it is worse when you are feeling so low when it has been so beautiful outside. It is awful when you haven;t got a good relationship with your GP. Had the same one for about 30 years until he retired and it has taken me a good 2 years to "train" the new one and just as we seem to be coming to a good understanding if we move I will be outside his catchment area and will have to start all over again.

I hate it when they just put every sympton you have down to fibro when in fact it could be something else entirely. Whatever it is you need emphathy and support.

Soft hugs coming your way.x

[Hidden]

Hi Rosewine,when I moved here I registered at the nearest practice but hated it -staff were rude and unhelpful,the Dr I was given had an alcohol problem and his replacement I found rude and obnoxious ,so when a friend said a new Gp at her practice was looking for new patients,I transferred over.mine was Ok all the time I went with minor problems but as soon as things kicked in in 2011-when problems started and had no support or acknowledgement etc.

fibro diagnosed in 2005,hardly went to gp until 2011.everything was fibro and "your stomach" which tells nothing especially as pain was elsewhere,.the diagnosis I received end of last year should be proof that he was negligent cos he refused to accept cough/swallowing probs.

that's my point ,they put everything down my stomach-based on a previous scan result-and when went with cough /swallowing probs -it was you've had a scan.so you can get new things that appear after a scan should be investigated.

now im tarred with the proverbial brush cos they will have sent my records to the new gp and they will hold it against me when I havent done anything wrong except want a diagnosis..

in the meantime,ive lost about 1/2 stone from my hips and legs yet stomach more distended.i don't know how they can say its nothing when it s rock hard and so heavy.stomach measures 43". 2" more than hips

[Hidden]

just been woken at 5am by Annie wanting out,this is so unfair-they are not accepting any blame and her letter does not comment on or give any excuse for his comments.it is not acceptable for the way he spoke to me ,comments made and dismiss my symptoms.Writing back to NHS England,even criticized me when I went to hospital with severe abdominal/chest pain as advised by 111 doctor,how do they know I wasn't having a heart attack.I didn't ask for any scans they arranged them so it is unfair to pin that on me and just because I had one scan ,doesn't mean to say something else can occur.

I want an apology from them for making out its my fault for trying to help myself and to admit responsibility see what NHS England say.

I wont ever get any support from the new gp because they refuse to accept any blame.

he let me suffer for two years because he refused to accept swallowing problems and choking.i want my records to see what he has put .ill be in tears at my appointment next week with the new gp.i dont think they'll accept it either

Im sitting here feeling how hard my stomach is-the tightness and pressure on my ribs.my dogs' concern is proof something is not right and I know my body.

[Hidden]

cant cope with today.the more I think about it the more I get tearful.i wake every morning with a heavy stomach and pelvic pain and to see the concerned looks on my dogs' faces,they know .ive booked an appointment with my now GP on Tuesday to see if she will do anything and take me seriously .the practice manager I feel is lying,she claimed to post the letter herself but I dont believe that it was posted as I would have received it,she stated I attended the surgery on the 3rd June which is crap as I never went near the place after seeing her on the Thursday and she cancelled the appointment booked for 1st june without considering what it was for.saying "just because she didn't think i needed it "is not acceptable.how can I attend an appointment never booked (1)as they had already removed my access to their website plus (2)the fact that I was at the CAB on that day and other appointments/etc.?

I ve written back to her saying im not happy with her reply as its the Gp whose comments etc contributed to all that has gone on.NHS England advised this as was my intention and said there was no more she could do and to contact the ombudsman if still not happy.

.I cant get over how I can get referred to a consultant for a recurring problem and the diagnosis to be something it is not,and they think that is acceptable.to my knowledge and experience you get referred so they can resolve the problem by means of treatment or if necessary an operation,not to get told what you dont have.

and how he can get away with making the comments he did,non acceptance of symptoms which another gp investigated for and produced results but no treatment??

how they can comment on something and then dismiss it as not being caused by something.

i feel like telling them "go rot in hell".if she doesn't reply to my email or doesn't accept responsibility then i'll contact the ombudsman,if my fears are true(and I know my body)then i will sue them for neglect.

[magnetta]

Sorry to hear you are feeling so low. There are loads of different GPs out there, keep trying new ones until you find the right one for you x

[Hidden]

Hi Magnetta

I had a good GP until four years ago then he caused me to lose all faith and trust in him. they are fine as long as they can fob you off with meds,but stand up for yourself and try to help yourself cos they don't and they don't like it.why should they get away with neglect cos that is what it is?

[Hidden]

didnt know whether to post here or on pelvic/ pain forum

woke today as every day-woken by dog,Annie ,didnt want to get up cos so tired from strange real-life dreams ive been having since on new meds.worst my pelvic pain has ever been,as soon as up and dressed,also abdo pressure and tightness from clothes.it is so "heavy" can barely move.took dog s out but not far at all ,and have done nothing since.feelign depressed cos of recent events and struggling to cope,with every day things.tightness in stomach area also disabling.thinking how can they not accept my weight gain is not diet related or due to lack of exercise.

letter received from gp practice (sorry if ive mentioned this before)and everything is worded so aimed at blaming me and no mention of anything the Gp has said or dismissed.they are protecting themselves.the practice manager stated I had an appointment on the 3rd june and was seen by a GP.impossible as they had removed my access to the website and I had appointments elsewhere on that day .plus I hadn't been anywhere near the building since 29th may.

I don't believe she herself posted the letter-I-never-received-as it is normally the secretaries that type and mail their post.

NHS England advised me to write back with the content of the letter im not happy with and to contact the ombudsman for advice.all this was fuelled by his lack of support,dismissal of symptoms and unacceptable comments,unprofessional behavior,non acceptance of my symptoms since 2012.they claimed to have gone through my notes and said my abdo problems began in 2009.i don't believe they did cos ive kept a record of what problems I had and when they started and it was from 2011.

and I object to being made to feel like I've asked for scans they've done and they mentioned me going to A&E a couple of times and yes it was abdomen/chest but they say any severe chest/abdominal pain.choking episodes then go to A&E call 999.that is what I did .

Emailed ombudsman for advice on how to lodge a further complaint

[Hidden]

so warm and sunny outside but I cant enjoy it,crying all day today.tightness around stomach and diaphragm so concerned.my dog was once again rubbing his head on the top of my leg hes telling me something.have an appointment on Tuesday but wondering if I should cancel that and make it tomorrow.what if this new Gp dismisses me like mine did?so many questions and things going round in my head how they have treated me.

[Hidden]

had to take My annie to the vets today.from the time I got up had the intolerable pain and heaviness .it doesn't ever go away and can barely function.have to wait two weeks before getting test results and then she appears to be on holiday as no appointments available online.it s like going back four years when my abdo problems started