Hello all, this is my first post, but have been visiting this site for a while just haven't had the Confidence to post till today.
I was diagnosed with rheumatoid arthritis last year, and Fibro just 8 weeks ago.
I have 2 young children 2 and 4, so am really struggling.
Feel very along, as it's hard to get people to understand a illness they cannot see.
How do you all cope?
I feel like everyone just thinks I am lazy. I wish I could do every think I used to do, but my body just won't let me.
Feel like my children suffering because I am suffering with pain and fatigue.
The drugs help but don't, it's a vicious circle.
Will this ever get easier?
Thanks for reading x
hello and welcome, can you get an occupational therapist assess your home to see if improvements can be made so life is more bearable for you?
Hi, thanks for your message.
I never thought of that, how do you go about that? Through the GP?
I had help through my health visitor, she recommended home start, and they have been a great help with the children, but it is a long week looking after the children by my self, when I'm Struggling to look after my self some days.
My husband is great when he gets home from work, but coz I'm not well and can't work he works 6 day weeks, so only have his help one day a week.
I sure when my children get older and go to school things will get easier I hope.
If I could afford someone to help with the kids I would, I was hoping I would get my pip so some of that money could help but I only scored a 4 so Didn't get it.
The way in which we describe our disabilities is what determines whether we get benefits or not. If you want to appeal try benefitsandwork.co.uk they produce guides on how to apply for disability benefits and how to describe your disabilities.
Occupational therapists visit your home and are avaliable via most social services departments.