MichelleButterfly4 years ago

Hello 88Rach and welcome to the forum. In the future you may wish to lock your posts to protect your and other members privacy, here is a link on how to, healthunlocked.com/fibromya...

After being diagnosed it can feel a little overwhelming. They are many ways in which people can help ease some of their symptoms. I'm sure other members will have suggestions too.

Try to pace yourself as much as possible. Over excertion can cause symptoms to flare up. You will get to know what is right for you as time goes on.

88Rach in reply to MichelleButterfly4 years ago

Hi! Ah thank you, I knew I’d end up making a mistake 🙈 I’ll be sure to do that next time!

That’s a good idea, I’ll be sure to pace myself, I might get a symptom tracker to see what triggers certain symptoms!

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Alb24 years ago

Well done for wanting to stay positive😊As another reply states, pacing yourself is key . I have found gentle yoga absolutely central to getting through the day. Especially yoga Nidra which is incredibly restorative. Meditation too helps keeps me centred. Learn to listen to what your body is telling you and work with it. I did go through a period of mourning for the person I was but I’ve learned to adapt to the new me instead of fighting against the change. I wish you well for the future🙏😊

88Rach in reply to Alb24 years ago

My boyfriend is planning on helping me out with some yoga so I don’t have to do it alone, which I’m sure will help me out! Thank you for your advice. I’ve been the same too, I’ve been finding it difficult to accept that I won’t be like how I was, but since living with all these symptoms I’ve still been able to do so much and make so many positive memories. Thank you, same goes to you too 😊

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Hidden4 years ago

Sorry you’re having to deal with this when you should be enjoying your time at Uni.

How you’ve described your run up to diagnosis is exactly the same as me. I was convinced there was something wrong with my immune system as I kept getting “bugs” ( as I thought) that caused headaches, washed-out feeling, aches and pains.

All I can advise re Uni work is to get your dr to communicate via letter to your tutor how fibro affects you. Universities, colleges and schools have to make far more provision with students with health needs than they did back in my day, but they can’t help you if they don’t know. Get a college counsellor on board perhaps so he/she can help you as an advocate if necessary.

Good luck with the rest of your course.

88Rach in reply to Hidden4 years ago

Thank you for your advice! I feel like my body was so rundown before all the other symptoms started up, which was also really effecting my work! My university have been so understanding and have put me in different arrangements etc. I’ve also got the opportunity to take up counselling there, which now I’ve been diagnosed I think I’m going to take the offer up. Thank you! 😊

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88Rach4 years ago

Thank you for your reply! I will be sure to check those channels out!