Hello all I've just joined. I've suf... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Hello all I've just joined. I've suffered with fibro for over 25 years. First time joining a group.

pearly_pearl profile image
12 Replies

Looking forward to being a member, I just joined today I started suffering with fibro when I was 27,

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pearly_pearl
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12 Replies
phlebo123 profile image
phlebo123

Hello Pearl and welcome!

So pleased you have joined us but sorry to hear that you have had this condition for so long.

You must have so much experience of living with fibromyalgia, I expect you can probably offer lots of advice to us all!!

Look forward to "hearing" from you in the future, :) xx

joannie1964 profile image
joannie1964

Hi pearly_pearl, welcome to the group. Ive not long joined and already feel the benefit from so many warm and helpful people. It's truly a blessing to have this site so that we can talk to people who understand us. So if you have any tips tried and trusted please do share them with us, I'm a fibro novice myself recently diagnosed but also have depression ME since 2010, but actually think I've had it much longer and arthritis.

Gentle Hugs

Jo x

Welcome Pearly Pearl,

I hope you enjoy being part of our often hilarious site. There are lots of lovely, caring people willing to lend an ear, share experiences, give support or share a chuckle. There's usually someone around at anytime of day or night. Looking forward to 'seeing you' around.

A big welcome to you my friend xxx

rosewine profile image
rosewine

Welcome to this wonderful site. After having fibro for 25 years I bet you are an Expert Patient on the subject and can give us some much needed tips.

I think you will find the people here warm and welcoming and alot of fun as well as giving some excellent advice.x

BlueMermaid3 profile image
BlueMermaid3

Wishing you a warm welcome 😊

Like you I've had Fibro and CFS for over 30 years.

Everyone here is so friendly and you will find lots of moral support when/if you need it.

It is so draining being in constant pain.

Gentle hugs

Lu xx

glochessum profile image
glochessum

Welcome to the site, it's a great place for information on the dreaded desease.

maxwellous profile image
maxwellous

Hello Pearly pearl, nice to meet you, I haven't been a member long but I am so glad my sister told me about it, she's on the thyroid site. I can't tell you how good it is here so friendly & informative, I've learned a lot & its nice to be able to relatecwith others in similar positions.

So welcome.

Smiles to you :-) :-) :-)

dillydally1 profile image
dillydally1

hi, welcome to the site. sorry to hear you have had fibro so long. x

TheAuthor profile image
TheAuthor

Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site FibroAction which hosts loads of useful Fibro information:

fibroaction.org

I genuinely luck forward to seeing you around the forum and I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

Zorago365 profile image
Zorago365

Hello Pearly pearl, i have also had fibro for a long long time, its actually harder to remember the time b4 I had it, although the last 10yrs have been the worst, Good days and bad, like we all have, find this site very gd. x

pearly_pearl profile image
pearly_pearl in reply to Zorago365

Hello Zorago,

I agree with you it is hard to remember before fibro. This site is good. As I said in one of my replies there have been times back in the early days of this condition before I really understood it, before I was diagnosed, when I was in terrible pain I really thought I was dying. But you are right there are really bad days, better days and good days. As the years have gone by I have learnt to try to just get through each day not worrying about tomorrow. Because tomorrow has its own trials. I have tried to find some joy, not allowing the fibro to rob me of living.

Peace and better days ahead for you.

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