Sometimes It feels so isolating - Fibromyalgia Acti...

Fibromyalgia Action UK

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Sometimes It feels so isolating

BeautySoul profile image
4 Replies

Hi everyone I'm new here but have been reading different forum posts on Fibro for a while now. I'm 29/F/Uk and was diagnosed with FM after months of being convinced I had MS :O Of course I was relieved when I was told I had a condition that wasn't terminal or degenerative but almost two years post diagnoses its been like a rollercoaster. It took AGES to find the right mix of meds to get rid of the pain and when I finally managed to get the right meds and dose I so happy to finally be pain free I was literally back to normal again (Side note, dose was now 3 x 300mg gabapentin, with 2 x 25mg Amitriptaline) but what did I go and do once I was pain free? I quit smoking using a medication called CHAMPIX. Well. Biggest mistake EVER. Yes it worked wonders in completely destroying any nicotine craving whatsoever (I used to be 40 a day) and I now smoke Zero. But it completely messed up my meds and my fibro pain since starting the champix has come back with a vengeance. I've now been off the champix for 4 weeks but still continue to be in pain despite increasing amityptaline. So I will visit my GP tomorrow to talk to him about trying some meds. I'm also taking a zopiclone every day (in the day) just take the edge of the pain. Anyway I apologise for rambling on (and the terrible spelling) I'm just so fed up and lonely. I have great friends and family but no one can really understand unless they have it too. I get sick of hearing myself complain about it so I don't even bother telling people about it anymore I just grin and bear it but I'd love to make friends with people who know what its like. Anyone looking for a chat buddy get it touch perhaps it would help to speak to others in the same boat. Take care all X

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Lucyhobbit profile image
Lucyhobbit

*hugs* It sounds like you've been having a rough time but well done you for giving up the smoking - that can only benefit your health in the long run. Fibro is such a monster at times, and hopefully your GP can advise you how to get your pain levels back under control. There's always someone here with a listening ear if you need it.

BeautySoul profile image
BeautySoul in reply to Lucyhobbit

*Hugz* right back and Thank u so much :)

TheAuthor profile image
TheAuthor

Hi BeautySoul

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and I genuinely hope that you find it useful, informative and loads of fun! I have pasted you a link below to our mother site, FibroAction which hosts loads of useful Fibro information:

FibroAction Website:

fibroaction.org

I am so very sorry to read that you are struggling and suffering with your Fibro, and I sincerely hope that you can find the answers that you so desperately desire and deserve. I always think that changing or amending medications are like pulling on a lose thread as everything can come undone, so I want to genuinely wish you all the best of luck with getting back on track with your drugs.

All my hopes and dreams for you

Ken

BeautySoul profile image
BeautySoul in reply to TheAuthor

Thank you so much I feel better already just knowing there's somewhere I can come and talk about it to people who truly understand. Thank you :)

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