Hi all whent to bed last night with a bad head taken some pills whent to sleep woke up at 2am could not go back to sleep got up with a bit of a bad head had a nose bleed not a big one did not feel too bad my husband came back from gym I was on the phone he sed wot have you done to your eye I was still on phone then whent up stairs still on the phone my right eye lid was bruised he sed that wot I had sed to you so I got in shower tops of my legs and my top of my arms hurt any way I phonr INR clinic told them cos my INR was ok on Monday it was 2.2 so they told me to phone DN cose they take my bloods so they can come and do it on Monday cos they was not ment to come back till the 30th I don't feel bad or any thing just need to make sure it was ok cos iv not rub it or bang it like I had last year and they sed cos I had bang it last year it took 2 days for a blood clot to drop it to my eye as any one had this before thanks x

6 Replies

  • So sorry to read your post sounds as though you are going through the mill at the moment. Let us know how you get on on Monday when you get the results of your blood tests.xx

  • Go onto the Hughes Syndrome website and HU support group. You will get really good advice there.

  • Yes I will do thanks x

  • I am so very sorry to read this, and I genuinely hope that you can find the answers that you so desperately desire and deserve.

    All my hopes and dreams for you


  • It's fun my eye dose not look as bad this morning iv never know a bruise just to go like that they is still a bit there will know more when I get my bloods back on Tuesday DN are coming on Monday xx

  • Got my bloods back yesterday they gone from 2.2 to 2.8 they are ment to be at 2.3 but still stay on same warfin and DN to come back in 2 weeks my back and hip and feet and ankle hurt so much I am on morphin patches been on them for a year as well as gabapentin and paracetamol but the patcher are burning my back now so don't last a week cos have to take them off doctor offered me cordine but I sed I don't wont to go on them so dose any one know if they any think I can take I am going back to doctors on the 10th April and will aske him he's a different doctor but need some think to take the edge off still have pain but the pitchers do help x

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