PIP HELP PLEASE : Hi everyone... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,983 members67,145 posts

PIP HELP PLEASE

K4ttt profile image
10 Replies

Hi everyone 👋🏽 , hope your all keeping safe & as well as can be in is crazy world right now 🙃

This evening at 7.30pm I missed a phone call so phoned 0808 straight back & found out it was from pip about phone interview as had to fill in for new PIP claim as mine runs out end of April. I gave him my National Insurence number & waited 8 minutes then he hung up on me leaving me waiting till Monday morning before I can phone back.

I’ve been on DLA & then PIP for 10 years now for COPD & Fibromyalgia illnesses .... & I thought they were leaving it for 3 months ? I’ve been to two tribunals & was on indefinite DLA before it changed to pip & now on full on both high mobility & high care as the tribunal decided I needed this for me as also my life line to the outside world How can they tell from a telephone interview how my health is ?

I’m so fed up with this over & over ! What the h**l (edited by admin) is going on. I’m in constant pain, I don’t sleep & my breathing is not getting better. What proof do they need as sent letters from consultants which I used at my tribunal so I can’t get my head round this & any help , advice would be great please. Thanks 🙏 K4ttt xx

Written by
K4ttt profile image
K4ttt
To view profiles and participate in discussions please or .
10 Replies
releasethemagic profile image
releasethemagic

The telephone call is replacing the face-to-face Disability Assessor assessment due to Coronavirus. It sounds as if you might be getting a light touch review, so don’t worry. Ring them back, tell them the call was cut off and when you are available to take a call from them. I am sure it will all be OK.

K4ttt profile image
K4ttt in reply toreleasethemagic

Thanks so so much releasethemagic.

Just an unusual time to phone on a late Friday evening & as I’m such a worrier I won’t sleep at all this weekend. I hope your right about a light touch review. Take care & be safe love K4ttt 🥰

in reply toK4ttt

My phone call was at 7.55am, they seem to be working alot longer hours. I am surprised that your phone showed the phone number, the text I received before my phone medical for PIP last week told me the number wouldn't show and on the day they were correct it came up as a private number. X

K4ttt profile image
K4ttt in reply to

Hi, sorry late reply as up all night in pain with my fibromyalgia, can manage the no sleep bit but with the pain is unreal like everyone knows on here & most probably the phone call stress as worries me not knowing & waiting helped trigger it worse. I actually missed the call as only rung a few times & phoned them back then after being hung up on the line said closed at 8pm. I have the number now if anybody needs it but the crazy thing is the missed call from them disappeared off my dial list 😉 & I didn’t remove it, thanks 🙏 & take care xx 😷 xx

K4ttt profile image
K4ttt

Hi Ajay your so right it is a nightmare especially at this time with what’s going on. I didn’t receive any notice just a text reply saying they had received my form about 3 weeks ago. It kinda hit me as my health isn’t good & the thought of another tribunal is not good but at least they are very fair & have put it in my favour each time. Thanks for all your help & the 18 meters rule but I can only walk less then half of that on a not so bad day 🙃. Stay safe & take care love K4ttt

K4ttt profile image
K4ttt

Hey sorry a late reply Ajay 🙃 I really hope your right as the face to face consultations are absolutely stupid. I had one last time about 2 .3 years ago & was shocking, scoring 0 points ! The so called medical interviewer lied 🤥 so much it could have been laughable but wasn’t. So tribunal & they were all great & in my favour but here we go again Ajay. Sorry I can’t sleep till the birds 🐦 sing 🎶 then only a few hours 😴 thanks again Take care Ajay & your mum too love K4ttt

I would contact your MP's local office. Ask to see his/her Case Worker.

I tried to send you a private message but it didn't work. x

K4ttt profile image
K4ttt in reply toMary-intussuception

Hi thanks Mary my internet has been playing up today but put my data on now so welcome please try again. Thanks so much as I phoned pip today & was told will be getting a letter in the next two weeks & I’m dreading it to say the least. My health is not going to get better enough to come of pip & such a waste of time money & so stressful especially with the situation at the moment. I have only had a few hours sleep since my disconnected call from them Friday late evening. Always had such a high pain threshold but now it’s all flaring up & panicking. Hopefully will be ok & the world will get better 🙏 thanks Mary love K4ttt xx

Mary-intussuception profile image
Mary-intussuception in reply toK4ttt

Hi I've only just seen your reply.

Still won't let me send a private message - says I don't have the authority to do this !! Fault with Health Unlocked I think.

Try sending me a private message & then I should be able to reply. xx

ps

Don't take it personally about PIP assessment & nil points - I hear that they do that to everyone. Also heard things will be changing though as DWP going to do it all themselves.

K4ttt profile image
K4ttt in reply toMary-intussuception

Hey thanks Mary I will try send you a private message now my sweet friend. You’ve been more then helpful & appreciate this. When with DWP was a lot better as was on indefinite then 🙃 😚 xx

Not what you're looking for?

You may also like...

PIP APPEAL

Hi, can anyone help me as I’m going out of my mind. Long story short, I am awaiting a date for my...
Pablo199 profile image

PIP tribunal

Hi there I had my PIP tribunal December and judge wanted more medical evidence as lots was missing...

PIP HELP Please

Hi,I would like some help.... I have been on DLA for a number of years now and I have been sent a...
bobajob profile image

Tribunal date for my Pip appeal

Arghhh help!!! Advice needed, I’m in a panic. This is the second time I’ve applied for Pip and...
Kala83 profile image

Help I'm confused with my change from dla to pip

I'm confused with dla and pip. After waiting since end of January for a decision on my pip I...
Alice2355 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.