Don't agree with PIP Review decision ... - Fibromyalgia Acti...

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Don't agree with PIP Review decision , advice needed

IlGattoPanceri profile image
β€’24 Replies

Hi all,Hope are are enjoying the weekend the best you can.

Recently I have received the PIP review decision and I don't agree .

They just gave me the daily standard award and no mobility (4points).

It's so infuriating and disappointing, letting alone the fact that the whole process has made my fibromyalgia flare up a lot, I have noticed my depression got much worse as , again, not being properly listened and not receiving the help needed makes me feel I don't have any worth and being very misunderstood.

I have being very clear about my difficulties and my daily struggles and the assessor seemed to be understanding etc.. what a farce. On his report he down played everything I said. I also clearly told him I am constantly in pain with my legs, had an surgery and I am awaiting another one, I am in crutches since 3 years, I can't walk over 20 meters without pain and breaks.. his decision was that I could walk 50 to 200m...

He also said I didn't seems anxious or mentally distressed during the phone assessment.. all those questions made me cry and he heard me.. and he still said I wasn't mentally distressed..

I don't have any more energy to fight it.

I don't know if leave it and take the punch again of not getting what I need, or invest in a lawyer to help me having a mandatory reconsideration.

Citizen advice never responds my calls, they are always busy with someone else s apparently.

I have recorded most part of the assessment.

Please if you have any advice are very needed and appreciated.

In the meantime I am sending you a big gentle hug

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IlGattoPanceri profile image
IlGattoPanceri
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24 Replies
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Dizzytwo profile image
Dizzytwo

Hi there, if you don't agree with the decision then your only recourse is a MR.

Only you know if you wish to go down this route. Only you know if your up to going through the MR processes.

You said citizen advice was busy apparently. It could be they where very busy. CA are very over stretched and do a wonderful job imo.

What ever you decide I wish you luck.

Momo

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toDizzytwo

Hi momo,Thanks for your response.

Do you know what implies going down the mandatory reconsideration route?

Do you know if there are any help out there to help me with it?

I have done some research online but you find a bit of everything so not really helpful at the end..

Hug x

Dizzytwo profile image
Dizzytwoβ€’ in reply toIlGattoPanceri

Have you tried getting in touch with the FMAUK benefits help advisory. check out the link below.

healthunlocked.com/fibromya...

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toDizzytwo

Thanks you Dizzytwo xx

FibronewbieJab profile image
FibronewbieJab

If you do not agree with the outcome of your assessment, then you should ask for a mandatory reconsideration. Have you got family or a close friend that can help you. CAB are overstretched as it is a voluntary organisation so it could be that they really are busy and cannot take on anymore cases.

Please do not just let it pass if you disagree with their decision. I know sometimes you feel you have no fight left in you, but if they have come to a wrong decision as regards to your condition and how it affects your daily life, then you definitely need to appeal against it.

Gentle Fibro hugs x

IlGattoPanceri profile image
IlGattoPanceri

Thank you very much for your response.Yes I am alone here so that doesn't help.

Big hug and thanks again for understanding

Janettewhitelaw profile image
Janettewhitelawβ€’ in reply toIlGattoPanceri

I put in help fill in pip form scope came up turn 2 us is a very good one ii just put in help fill in pip form and a whole lot of names came up butt these two are good try putting iin google and help numbers should come up hope you gett help the fact your. On cruyttchhes alone should give you points for mobility that’s scope and turn. 2us try these two goood luck

Dinkie profile image
Dinkie

If you have not asked for a copy of the assessment please phone and request one. Then go through each descriptor and highlight where you think you should have gained more points. Write your MR and explain where you think you were misunderstood (never use the words, "the assessor lied"). If you can get statements from friends, relatives, colleagues who witness how you cope or do not cope on a daily basis this can help too. You only have one month to send in your MR, athough you can, with permission and a strong reason why you are late, extent it although it is generally frowned upon so speed is of the essence. The DWP rely on folk not having the strength or determination to push and request an MR or proceed to tribunal.

There are many charities out there willing to help as well as businesses willing to take it on for you. Benefits and Work have some great pointers for submitting MRs etc.

IlGattoPanceri profile image
IlGattoPanceri

Thank you so much Dinkie, your advice is gold.Can you remember the name of some charities and businesses that might help? As I am exhausted and can't risk to waste time having less than a month.

Thanks again really really appreciate it

Noura1985 profile image
Noura1985

Hi

Sorry to hear this.

you sound frustrated ive just looked into the website @dinkie suggested

Please go to ( benefitsandwork) website . It does have some free help and advice that you can download once you have signed up to thier website

Further there are some other subscription ie possible Β£20-40 a year where you can get more one to one help with MR appeals and so on.

this is what I have understood.

All the best . πŸ™‚

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toNoura1985

Thank you very much Noura , your help is very appreciated x

Bailey13 profile image
Bailey13

hi, i totally understand, i had the same situation. At my assessment i was very anxious and cried and got very upset. The assessor seemed really nice but i was turned down. I asked for the report they wrote and it was lie after lie with no mention of my mental state. I did a MR and got same result so then i appealed and finally i got someone that took noticed. I was awarded both standard without going to Tribunal .

I know its stressful but keep fighting.

Goodluck x

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toBailey13

Thank you for sharing your experience Bailey, I very much appreciate it and it's helpful. Did you get a lawyer for the appeal?

To be honest I am having also much stronger mental fog since the flare up that s going crazy due to the stress of this situation and of course doesn't help. So doing it alone is even more scary.

Hug xx

Bailey13 profile image
Bailey13β€’ in reply toIlGattoPanceri

Hi, no i did it all on my own. I just read stuff on here and i belong to other groups that deal with Pip and just gather information from there. Just concentrate on the points they have not given you and explain why you should have them x

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toBailey13

Thanks so much Bailey.Can you share what other groups? If you remember of course.

πŸ€—

Bailey13 profile image
Bailey13β€’ in reply toIlGattoPanceri

The best i found was on facebook, a group called Pip, DLA & ESA support group.

Lots of questions and answers really helpful x

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toBailey13

Thank you Bailey, I will have a look πŸ€—πŸ€—

bigalan profile image
bigalan

Hi, If you are with the pain clinic they can write you a letter with all your problems on. You can then send this with your claim form. I did not know this until last week when i attended a pain appointment. This could be beneficial to you in your claim, Good Luck.

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply tobigalan

Hi Big Alan,I did pain management years ago and requested another one to GP a few days ago with no news yet. In both cases I don't think they can't help me within the time frame I have now for mandatory reconsideration .

Thank you for your advice anyway πŸ€—

Marchhare7 profile image
Marchhare7

Hi IIGattoPanceri, im sorry to read your experience, this is so difficult to deal with when thoses assessors are changing what you said. I would send that information to your local MP, say they need to review the system.

But unfortunately you need to do a MR, please look at Fightback4Justice they can support through the process

Remember self care first, gentle hugs

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toMarchhare7

Thank you for your response Marchhare, really appreciate it.I have called today pip asking for my full report assessment and they said it can take up to 7 days to arrive and cant send it via email.. and they only give you a month for MR.. they could have given more time but of course they don't want people to do any MR or appeals so..

at this point I don't even know if just wait to have my second knee operation and then ask for a change of circumstances or fight for my rights right now for what i believe is due to me..

Anyway thank you all for your help πŸ™ very very much appreciate it πŸ€—

Marchhare7 profile image
Marchhare7

Absolutely, you need to manage your health and flares ahead of your knee Op. I agree if its not the best time to take on the battle then dont. Please remember to add that to your evidence , when doing a review again later.Im sorry you have all this on your plate right now, ahead of an Op, take care

IlGattoPanceri profile image
IlGattoPanceriβ€’ in reply toMarchhare7

Thank you Marchhare for your kind words, sending a big hug

Janettewhitelaw profile image
Janettewhitelawβ€’ in reply toIlGattoPanceri

Get your mr in as soon as possable usually people at housing offices or khealth centre phone social security and ask if they know anyone who can help I’m in Scotland put in help with benefits in my area and usually something comes up but benefits and works if you join as individual it’s oonlly Β£11.95 to join they have a whole bit with how to fill form in do tThis on Google with your postcode or pip help fill in form my area with postcode this should bring up help disabled help to fill pip form post code should bring up help or phone dwp and ask if they know sometimes the dwp have own advisors ask them

Le

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