Fibro Conference

Hello everyone

Here is an agenda of sorts for the fibro conference I'm going to next month, looks like I'll have lots of information to bring back to you all.

I'm aware there are also still spaces available if anyone wanted to make a last minute booking.

Karen x

Iris Weverman, a registered physiotherapist from Canada who specialises in FM, will talk about chronic fatigue, stiffness and exercise for fibromyalgia. In a second talk she will discuss trigger points versus tender points. This is not to be missed.

Dr. Nick Read, a leading speaker from Sheffield, a gastroenterologist psychoanalytical psychotherapist, human nutritionist, interested in FM, will talk about his active interest in the IBS Network, and integrated medicine. As a nutritionist we are hoping he will give us a recommended diet for those with IBS.

Andrew Pothecary, a Specialist Pharmacist in Rheumatology & Biologics at the Royal Cornwall Hospitals NHS Trust, will be lecturing at The Clinical Pharmacy Congress on the Future of Clinical Pharmacy in London on the Friday. But he has agreed to stop over and talk to us on Saturday. We hope to learn more about the medications for our pains that our GPs describe for fibromites.

Afifah Hamilton, MNIMH Cert Phyt ITEC, GAP practitioner and nutritionist, is an alternative medical practitioner who uses herbal remedies for wellbeing. Afifah is medically trained and a specialist in physical, psychological and conventional treatments with herbal options. She will be discussing sleeplessness among other symptoms.

An American lady with fibromyalgia and a great reputation, will be with us to talk about her commitment for FM. We hope she will include news of research, life with FM in the States and living with fibromyalgia. Jan Chambers is President of the USA National

Fibromyalgia & Chronic Pain Association, founder of the Centre of Understanding, Research and Education of Fibromyalgia (CURE FM) and co-founder of the NFA Leaders Coalition, Executive Committee. Married for 35 years and the mother of 5 children, Jan has had a roller coaster ride with fibromyalgia since 2005. Her background really makes interesting reading and will save a lot of questions if you are coming to conference. This really is a lady who commands my highest respect and I am honoured she has agreed to visit us. Try fmcpaware.org/jan-chambers

“I’ve got my life back, and I love every minute of it” she said.

Another interesting speaker with big claims is Philip Rafferty. Born in the UK he lives in Australia and travels the world. A specialist in fibromyalgia, chronic pain and CFS he is a kinesiology ‘wizard’. He claims the corrections he teaches fibromites keeps them out of fight/flight/ freeze/survival. What he does he says is different to anything else. He achieves instant dramatic pain reduction. A must see!

We are again pleased to welcome Wes and John with the Benefits & Debt Clinic which will be operating Friday afternoon from 3.15pm. Look at their website - for debt and benefits frontlinedebtadvice.org.uk/ - you might find it interesting.

As usual there will also be other attractions. On Friday we have the film premier of the documentary film made at FM Conference 2014. It is called ‘Focus on Fibromyalgia’ and includes consultants’ comments as well as those who live with this condition. Be sure to see the film as it is a movie you must see. Lasting 65 mins. it is full of information and you will need to go back and back again to the film to see what you missed. Copies of the film will be available to purchase after the premier.

Jen Lee is back with us again for some light relief and with more Belly Dancing steps to learn. We hoping to have all doctors on stage Sunday afternoon. Do not forget the auction of wine and other gifts donated by delegates on Monday morning.

Simon Stuart, a leading member of the FibCon team, who works in the medical profession with the elderly, will be giving a talk about Alzheimers. You will also meet Nicki Southwell this time. A name some will know, Nicki has been working with Simon and I for several months as Assistant Co-ordinator. We were sorry to lose Teresa White towards the end of last year, due to her health problems. We understand she is on the mend but taking things slowly. We have a great team of helpers this year who will be wearing their pink badges and should be able to help delegates and answer questions.

10 Replies

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  • Have I misread it, where is it being held and when?

  • It's at the end of April for 4 days in Chichester x

  • Wow that looks like a marvellous combination of speakers from all spectrum of the medical profession and as you say some people with personal experience of the condition. Look forward to you passing on some of the knowledge gained.x

  • Hi Karen,

    Sounds very informative and fun! :)

    Great mix of guest speakers.

    Conferences like this help to generate enthusiasm and hope within the community!

    Thanks for sharing such a detailed description, Karen.

    Crazy_Horse

  • Sounds quite interesting! I hope that you enjoy it.

    Take care

    Ken x

  • I would very much like to attend please can I have details and how much and directions please.

  • Please can I have full details as I would very much like to attend. Can my full time carer come along too. Please message me with where, when and how much it costs.

    Thanking you

    Lottie

  • Please PM me your email address and I'll send you the info xx

  • Please can you send me details too? :) xxx

  • Hello lovely, please PM me your email address and I'll forward all the info to you xx

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