Not an FM sufferer myself
My wife was diagnosed with FM 8 years ago and has done run the course of every treatment on offer. No drugs worked (or had too extreme side effects), but mindfulness, CBT & self-administered needle therapy help her cope with the pain.
As an inflammatory arthritis sufferer myself, I've always been confused by the fact that her joints get red and swollen as FM is not supposed to be a joint disorder (from what we've read)
We recently become very intrigued by a short course of prednisolone that she was given for post-viral chest inflammation as for the 5 days she was taking the steroids, she literally had no pain, impaired mobility, fatigue or 'brain-fog'. It was truly amazing. Within 1-2 days of the steroids string, the pain started coming back and within 3-4 days she was back to square one, brain-fog and all. Even more distressed as those 5 days had given her a taste of what life used to be like.
On the back of that we got a referral for a private rheumatology appointment and had the most awful experience. The doctor wouldn't listen, was dismissive, and was patronising in his re-diagnosis of FM, and couldn't/wouldn't answer our questions about swollen joints and the steroids. It has left my wife really, really distressed.
When I continued to probe him about why the steroids worked when they are not supposed to for FM, he just snidely stated that 'well steroids make everyone feel better' and implied that they had improved my wife's mood and so miraculously all the pain went away.
I think my wife and I struggled even more as we're scientists, and for us new data is something to be investigated rather than dismissed
So I guess my question is, has anyone else had experience of prednisolone working so totally with their FM? I'm sure I'm not mad in constantly reading that steroids don't work for FM am I? Really not sure what to do next and who to speak to