Sore hands

[Carolinee71]

I know having fibromyalgia means bits of me hurt, other bits really hurt and a few more are unbarable . I take morphine for break through pain which on the whole is my back. So why tonight has my knuckles on my right hand decided to feel like someone is sawing it in half while blow torching each side.

I know the pain is part of this condition but at the moment I have had enough and don't know where to turn. I have had my injections into my back postponed twice ( once doctor called in sick on the day, second time hospital sent me appointment for the wrong day! )now and I will not be getting it til mid September! at least the injection makes my back cope able but now I just don't see a way of dealing with the pain. I really feel like I'm at the end of the line with just pain pain pain in my future . And now my hand, does anyone else just get so down with all the pain. All the things I like doing either mean walking or using my hands this condition is leaving so little of what is me. I used to be a glass half ful always looked on the bright side and was cheerful most of the time but now I can't see the point of anything

Any advice on how to get out of this though pattern would be gratefully received ,

Thanks for reading

Caroline

[Julie63]

Gentle hugs Caroline. I know only too well how the pain can get to you and make the brightest day seem dark, and the future bleak and not worth looking forward to. I am so sorry you are feeling this way. I find taking each day at a time helps. As does trying to relax, practising deep breathing, doing something I enjoy to take my mind off the pain. I go to a tai chi class for people with mobility probs and try to do a little warm up or stretch or move each day. Also, coming on here helps of course!

[Carolinee71 in reply to Julie63]

Thank you, I find no one understands the pain except for others with fibromyalgia . I just find it hard at times dealing with the pain and when I am like this I can't help but look back 3 years when I was healthy and didn't even take a paracetamol! I used to run a bookies and would think of nothing in working 50 hours plus a week. It breaks my heart to have to go cap in hand for ESA ( have just been moved into the support group, it has only taken a year) and PIP which I am still waiting for that brown envelope to drop onto the mat telling me no doubt I have been turned down for everything and I will have to appeal.

I just wish other people could understand what it is really like to have this, it's not just a sore joint. I wouldn't wish this on my worst enemy

Anyway time to sleep we never know, might we wake up and fibromyalgia has gone and we can all claim our lives back. Fingers crossed xxx

[TheAuthor]

Hi Carolinee71

I am so sorry to read that you are suffering in this way and I genuinely hope that you can find some resolution and relief to this issue. I also understand what you are feeling and how horrendous this really can be.

I always try and tell myself that pain is transient, that it is of the moment, and that better times are just around the corner. I know very well that this is easier said than done however. If this persists or gets any worse please go and discuss this situation with your GP, make sure they understand exactly how bad things are for you.

all my hopes and dreams for you

Ken x

[Hidden]

Hello carolinee, Have you tried a cream on your hands ? My favourite is called Phorpain gell and eases the pain in my hands quite quickly. My Hubby uses it on his back and does get some relief from it.

Please dont be despondent about getting PIP, I was totally honest with them about my walking ability and was surprised to get the enhanced payment in mobility.

I have disagreed with them about no care allowance but now you dont have to go to appeal straight away. you can call them and see if you can sort it out with the decision maker first.

I am waiting for him to call me back at the moment and will let you all know how I got on.

I hope this helps. Hugs sue xxxxx

[Shadows-walker]

Hi I get so much pain and swelling in my hands I have had my rings re size 3 times in a year ,I have found that compression gloves help at night when they are really bad helps, the pain gets so bad sometimes I think if I could pop them and let the air out it would help ithe pain seems to spread from my fingers tips and goes up past elbow and then with the pain from the shoulder down , I got the gloves off amazon but they are in the better ware catalogue but they came quicker from Amazon 2 days I just had to try something hope you get some relief x

[Shadows-walker]

Oh yes and I get volt oral prescribed to rub in my hands as a bit of relief when using my stick. c

[Angiedeaks]

Excellent advice by Julie63, basically the same for me. I know how difficult it is, living in constant pain, aches, pins and needles, heaviness, and fatigue, it's horrendous. The burning has calmed down for me in the last few days but it's awful when it's like your hands and feet are on fire. I can't always pin point what had caused me to have flare ups/bad days, I just do what I can when I can, and just take each day as it comes. To be honest, it makes me feel worse trying to work out why anymore. For me I tend to potter about as sitting or standing in one position makes the pain worse, hope some good days come your way lv, hoping they do for us all. Take care, lv Angie x

[karencw]

Hi Caroline, I know exactly where u r at . It's not funny being a fibro sufferer. My hands recently get red and sore and my fingers are begining to twist, waiting on an appointment to see about it.

Thinking of you

Karenx