Hi all, just wanted to share this with you. I'm sure many people have been told that they seem well, that they don't look in pain/ fatigued and manage to do everyday things! I have..many times. It has made me feel upset, angry, annoyed and made me think it's maybe all in my head, which I now know it isn't. I have tried to explain to family and close friends what Fibro is like, but no matter how empathic they are, they'll never truly know what this life is like and the daily struggle we often face. I recently found out that a lady who I've known for several years has fibromyalgia and has had it for many years. I was shocked!!! This lady is a very smart, lively, vivacious woman. Always friendly, outgoing, jolly, always has these 4 inch heels on which I haven't worn in years! I only ever see her when maybe once a month and she's always the same. After talking to her daughter, who didn't know I had Fibro, she told me how her mum struggles daily and the pain and fatigue she suffers. I looked at her mum and thought, well, she seems ok and doesn't look tired or in pain at all, how does she stay so well and I'm like this?! After telling the daughter I also had Fibro she too was shocked!! She then said I looked so well, and always am so happy, cheery and energetic. Yes, I suppose I am! However, she only sees me when I'm out playing darts, she doesn't see the pain I'm in after as I've sat down too long. She hadn't seen me in the shower at 6am trying to loosen off before my kids wake up. I realise I've done to her what people do to me, and innocently so.
Now when I end up telling people about my fibro, I'm a lot more understanding of their point of view and try to explain its often a hidden illness...I'll try not to be so judgemental from now on xxxx