I am diagnosed with Fibromyalgia and Chronic Fatigue Syndrome. Every day I am in pain and so exhausted I have been falling asleep at work. I only work 3 days per week but those three days are full on. I am finding it harder and harder to manage. I am waiting for blood tests results for Lupus. My other results are clear. I have an underactive thyroid which I take thyroxine for. I am prescribed Tramadol and Naproxen for the pain but they are not much use.
My mum (who passed away last year after a stroke) was initially diagnosed with Lupus but then with Churg Strauss Syndrome which is apparently not hereditary. Her illness started just like this
I am reaching the end of my tether. Work have been understanding (so far) but the truth is they need someone who is reliable. I couldn't work at all last week I was just so exhausted - I know you will all understand the acute exhaustion that comes with Fibro and CFS. Its so hard having something 'invisible' to others.
I am so down (total understatement) and fed up and frightened I wont be able to carry on working.
Any advice would be so much appreciated - thank you!