Fibromyalgia Action UK
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Confused and need help

Hi everyone , u have all been so helpful , & the amount of advice u all share is amazing so I'm hopeing u can help me. I was diagnosed with fibro 2 years ago. I'm a very positive person so to be honest when I was diagnosed I was so relieved that I wasn't going mad!!! That I thought ok with the right advice I can cope with this. Then a year later I was in a car crash and everything spiriled out of control & I feel so tired and low. I used to work 5 days a week and now only work 4 days . Just 5 hours a day . I really don't want to quit but have for the last 6 months started to pass out when my tiredness gets so bad to the point of I was actually driving and it happened. I have been reading a lot of posts an quite a lot of people are applying for pip. Is this a benefit ? I live in Newcastle upon Tyne , I am mobile but have days when I'm in bed for days. I'm so confused am I pushing myself too much ???? I'm in trouble at work as my production has decreased due to my fatigue , pain and fibro fog , but then I have good days . I'm so desperate for advice as I just don't know what to do ????? Am I exaggerating should I push myself I just don't know what to do , your advice would be so appreciated my fiends

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In answer to the last part, under no circumstances should you push yourself to do more, that will do more harm in the long run. As for the benefit side of things someone will come along here with good advice at some point x

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Hi Chirnie

I am so sorry to read that you are struggling so much with your Fibro, and I genuinely hope that you can find the answers that you so desperately desire and deserve.

I have pasted you a link below called how to claim PIP (Personal Independence Payment) which is replacing the DLA (Disability Living Allowance). This is a non-taxable benefit that can be claimed whether you work or not. It is a lengthy process but many Fibro sufferers have successfully qualified for this benefit:

gov.uk/pip/how-to-claim

I genuinely hope that you can sustain your employment, but if you find you can no longer work, then there is also another benefit called ESA (Employment Support Allowance) which is replacing Incapacity Benefit. I have also pasted you a link for this below:

gov.uk/employment-support-a...

I want to wish you all the best of luck.

All my hopes and dreams for you

Ken

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Author

Thanks so much for the information & support, fingers crossed I will get this sorted x

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Good luck Chirnie! x

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Hi, Chirnie, have you seen your HR. Dept? Who will advise your manager on the support you should be getting, and will arrange for you to go to an Occupational health appointment. O/H will more than likely say that the Equality Act applies. adviceguide.org.uk/england/...

Your GP can give you a sick note advising you to work at reduced hours for a while if that helps.

Your employer must not make things difficult for you it is against the law.

Hope this makes sense I'm not awake yet!!

Regards

Ali

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Thank you so much for replying & for the information & your support. I will definitely have to get this sorted

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HI there, you have been given good advice and I would ask if you have yet been onto the mother site. there is a lot of info on all things fibro , it is ...http://www.fibroaction.org

I think that you ill find it usefull

Hugs sue xx

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Hi. I find that if I listen to my body and rest when it tells me to it enables me to carry on. If I push myself I can be laid up for days. Take care juliekp

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I totally agree with your comment , I've noticed I I push myself too much I could be laid up for days . Thanks x

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So sorry for your suffering sweetheart!!! I worked until I just couldn't do it any longer. I'm not a resident of your country so don't know the answer to your question but if you could go to a pain clinic it would help your pain. As for work, you have limits now and with this disease you don't know from one day to the next how you are going to feel, so you might be looking at disability. Hope this helps and you get some relief from your suffering!!! xxx Mitzi

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Thanks Eva so much mitzi. I'm going to lookAt the pain Clinic & how they can help . My gp has never

Mentioned this to me . X

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That's so sad sweetheart as you shouldn't have to suffer when there are meds out there to help. I still have pain but at least it's bearable. Good luck hope you find some relief so soon!!! xxx Mitzi

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