Further diagnosis ... Why isn't it ever only just fibro

Hi guys I posted regarding carpal tunnel a few weeks back. I have a severe form and will require surgery on both hands. Time of work I can do without as our case loads are crazy. I also have arrhythmia.

Never mind I suppose it's all linked one way or another. On a plus side it's 2 weeks until pain management and I go on holiday the next day. Does anyone else have anything positive they are looking forward to?

Hope your all feeling as well as you can xx

10 Replies

  • Hi emjane4465

    I am so sorry to read that you are suffering so much at this time, and I genuinely hope that you can find some resolution and relief to your problems.

    I genuinely hope that your pain management goes really well for you and that you also have a wonderful holiday!

    All my hopes and dreams for you

    Ken x

  • Hi ken. My pain is ok at present it's just frustration if something else on paper. But there are people worse off than myself. Just being positive on everything :) I'm doing well at work and I've had a lot of praise from my manager and head of service. I would not change been a social worker for the world.

  • That is wonderful to read! I had a social worker come to see my wife and I last week, she was really lovely. I think having a job whereby you help other people is the most noble and rewarding employment anybody can ever undertake.

    I understand what you mean about the frustration, every time I go to the hospital for test results they find something else wrong with me? My Physio is just as bad, she keeps saying that I have this and that!

    Take care my friend

    Ken x

  • so sorry about your hands/wrists I too suffer badly the tips of my fingers feel weird sort of dead. The doc is still putting steroids into them so i have total empathy with you.

    Now my eyes are playing up

    you wonder what next?

    Try and keep smiling though it helps

    Good luck let us know how you go on :)

    xgins (fellow in frustration)

  • To answer your question, Hans Selye coined the concept of the General Adaptation Syndrome. The third phase is exhaustion, in which anything that stresses your system further causes detriment because there are insufficient resources left to cope.

    You can only do your best to alleviate all the stressors that you are aware of that are within your circle of influence.

  • Hi emjane4465. I had both hands operated on for carpel tunnel and the results were amazing fo me. Felt the release instantly. Good luck and chin up.Juliekp

  • Emjane4465 could you have hypermobility syndrome? Google it if you haven't already. I was diagnosed with fibro plus other things. The diagnosis didn't quite fit my symptoms so I researched further- and I have hypermobility syndrome, which is often misdiagnosed as fibro. Saw a specialist and got right diagnosis!

  • Retirement - but that's a long time away.

    You need to take care of you. Use that time off well. You're no good to others if you are unwell yourself. You're allowed to be a little selfish once in a while. The case load wont go away - if only and fretting wont help.

  • Hi Emjane4465,

    First of all, I'd just like to say that I am both jealous and full of admiration that you continue to work in such a difficult and stressful line of work despite your conditions.

    After three years of struggling and fighting hard to keep as much of my good health and mobility as possible, I had to give in gracefully and accept defeat. I didn't fight the 'restructuring' and eventual redundancy.

    I know this might sound a little off message but have you considered that although you obviously love your job and it's more of a 'calling' than a career (at least that's how I used to describe it), it is just possible that internalising all the stress that comes with it is what is actually 'killing' you? Sorry to sound so dramatic but that's the exact question I was asked by my counsellor.

    According to my Rhemy, the issue some of us on this forum have, is how we cope with or effectively manage and indeed, channel our stress. Poor management just makes all our symptoms worse and will often encourage our bodies to develop new associated problems like arrhythmia or AF.

    Praying my situation will change but recognising that our 'calling' is itself going through so many difficult and stressful changes at the moment that it may be some time before I'm back there full time. In the meantime, just providing the necessary admin support when I'm able so will definitely live vicariously through you for a little while longer.

    Wishing you the very best of future health, a terrific and stress free holiday, many many more wonderful years supporting amazing but vulnerable families and individuals, last and not least, at least two extra spoons each day to make it easier for you to type up your notes and reports as well as eating your gelato on a blissfully warm day.

  • on the plus side, carpal tunnel surgery is generally very effective and normally has a short recovery. if your wrist pain was just fibro, you would be stuck with the same meds for thefibrio and end up with very little relief. arrhythmias are also generally well managed unless you have significant heart damage or a congenital problem not amenable to intervention. it may not seem like much but its something. i hope it helps :)

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