Fibro really isn't just laziness and depression.

[jekkstar]

As some of you are aware my family is having a really tough time,funeral is on Monday. I have met people who don't really know me. With one actually saying "I think all women at some point have fibromyalgia". Then going to advise me that all I need is a positive attitude. Problem with that being my depression is the hardest part. I think more should be done to educate people about the illness. For instance I am so wound up at the moment my throat is painful and very tight,my breathing is rasping. This just came from nowhere,I think its stress.

[Deebee17]

Hi, I wish I could just give you a hug, you sound so lost. Stress has an awful effect on the body and for us with FM it manifests itself in so many ways. People who know nothing about FM are always quick to try and reason it out. I hate to say it but the quickest way for awareness to be raised would be for a high profile celebrity to develop it.

My line manager still doesn't understand that when I say I am hurting it's all over and makes odd comments about everyone having health problems. I've decided that all I can do is take one day at a time and that's what I think you need to do too.

Keep an eye on this forum, it offers amazing support.

Hugs xxx

[jekkstar]

Thanks hun, I do try. With my O/H father passing away and both him and my kids needing my support I'm struggling. I feel like a duck serene above the water but paddling like crazy below it. I'm trying all I can to help and support my family and just not break myself. I want a badge that says I have fibromyalgia and sometimes I'm in pain and a bitch ....deal with it!

[Ginsing]

Hi I like the badge idea very good what was it I HAVE FIBRO and SOMETIMES i AM IN pAIN AND A BITCH DEAL WITH IT! How often have we all wanted to say that! Also your duck analogy is brill I shall join you pedalling like crazy. So basically you are not alone we are all here with you and I think you would be amazed at exactly how many of us there are! Heads up girls we are here to help listen and support you. I have just been reading up on pain and how we try and hide it from others. We need to share are pain it helps making the coping easier.

I know this week is going to be difficult for you but we are here if you need us - good luck xgins

[Hidden]

Poor you. Agree people say stupid things about fibro all the time. For a relatively common illness it is surprisingly poorly understood. I think that's why some people say they have arthritis

[tabithaboots]

Big hugs to you.I'm sick and tired of people saying I neef to pull myself together,and i'm lazy,God help these people that criticise us if they ever get fibro.I wouldn't wish it on anyone.Big hugs to you.xxx

[Allpainedout]

It's so sad so many of us are treated badly because others refuse to belive we are ill !!!

A good friend of mine says she understands yet she still says things like GOING SOMEWHERE NICE TODAY ? Aren't you lucky you don't have to work !!!!! And the truth is if I do go anywhere I hurt while I'm out I usually have to come home early and then I suffer all night and days afterwards !!!! And I would love to work ! Would love to earn my own money!

But am too ill to work !!! I would spend more time on the sick than I would be at work !! That's why I' have disability !!! But the truth is we are not understood its better now than it was but there's still a long way to go !!! Try not to get upset when silly people refuse to understand there are plenty of us that do

Sending best whishes to all my fellow fibros try and enjoy the sunshine take care x