I have been referred to pain clinic in February. First day was about general information and we have to stay seated for 2hrs 1/2 listening to explanation and strategies to cope with pain. They say you can move around and don't need to be seat all the time but I noticed people were just there seated and starring all along from beginning to end, how do these people do? I guess they were collapsed in bed afterwards! I felt like I should be listening to that all information from a hospital bed, honestely! Or at least comfortable sofas with cushions.. I left hospital devastated, feeling awful! I know it is the way it is done, I know I have to go through this process to be able to get more help but, OMG! If you are not in pain you have no idea how every little detail of your life matters. That day meant that I had to arrange a paid baby sitting for my children when back to school, I also had to arrange a friend to take me there and pick me up and I also paid her. It also means that I missed my rest and then the rest of the day was dead in my bed in exhaustion and then the next 2 days and pain increased.Well, I still had hopes for a better day when they offered me an individual assessment 2 weeks later. Have been there again, same deal, but at least was during school time and didn't need to arrange for a bb sitter. I again was assessed for 2 hrs,( talking from a chair) and the Occupational Therapist said that my case was complex and I needed to be back there for more assessment but then just after Easter! Oh! I feel discouraged. I just want someone to offer me some real help, anything, even a injection that could knock me down, but something pratical that can make my life better...I wont give up, I actually planning to do all the way for the Pain Clinic just to check what type of help people are getting from the Pain Clinic. I was shocked by they way they think we can cope it. I will let you know later how I am feeling about and what kind of help I have been offered. Can't stop thinking about a hospital just for people with Fibromyalgia, ME,CFS and so on... A place where people would be genuinely looking forward to help us, give respect and make us feel human again.Hope I haven't discouraged anyone...just sharing my experience...feeling frustated, I a mum of 2 wonderful little kids who deserves better than what I can offer. Ariadne
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