Wot are the chances of people with fibro getting PIP

[amanda2277]

From wot iv read its very hard to get it and we've all had to fight for it and its wrong

[booohooo]

Hi amanda2277 im waiting for my decision at moment boohoo xx

[TheAuthor in reply to booohooo]

Hi booohooo

I sincerely hope that you are feeling as well as you possibly can be today?

I just wanted to wish you luck with ascertaining your PIP. How long have you been waiting? Have you undergone any medicals?

All my hopes and dreams for you

Ken

[TheAuthor]

Hi amanda2277

I sincerely hope that you are feeling as well as you can be today? This is a really difficult question to answer, as many members have their benefits and many don't.

I believe that we are all unique individuals and with this in mind, we all respond differently to both our illness and our medications. So, when it comes to our assessments for PIP or ESA then we are all going to get differing outcomes.

It is really worth fighting for your benefit, as you have a real and genuine illness and deserve the recognition that accompanies such an illness. So if you do not succeed first time, then please keep fighting until you get the benefit that you truly deserve.

I have pasted the FibroAction website link below as you may find this useful:

fibroaction.org

I genuinely hope that you manage to get your PIP as and when you apply for it.

All my hopes and dreams for you

Ken x

[booohooo]

The author been waiting 7 months av had 2 meds first one atos lost all my info on computer so ad another dec 4 got letter last week from dwp saying they dealing with it so just waiting game boohoo xx

[Mdaisy in reply to booohooo]

Hello Booohooo,

If you would like to contact FibroAction [e-mail] we can send you some information that may help with the process of claiming PIP.

I look forward to your email

Best Wishes

Emma

FibroAction Administrator

[booohooo in reply to Mdaisy]

That would be appreciated tanks mdaisy booohoooxxxx

[Fibrofoggy14 in reply to Mdaisy]

Hi Emma

Please would you mind sending me some info? I've been waiting since October 13, i appreciate that ATOS may be having difficulties, but they werent very helpful - I keep phoning asking about the status of my application but am constantly told im in the queue for invitation. Thanks for all your help. Fibrofoggy14.x

[cowsrock in reply to Fibrofoggy14]

Hi Fibrofoggy14

I had been waiting since August 13, just got mine yesterday and yes got daily living standard, not enough points for mobility yet.

wont be long now and all back dated, good luck.

Cowsrock x

[booohooo in reply to Mdaisy]

Hey emma can u send me sme info abt pip claim boohoo xx

[jane59 in reply to Mdaisy]

hi can yousend me some info pls emma I have my medical on nov20th many thanks xx

[Lizzie57 in reply to Mdaisy]

Hi could you possibly send me some info too, not applied for pip, not sure how or where to go.

Thanks

Granniecrochet

[TheAuthor in reply to booohooo]

Hi booohooo

Hopefully you won't be waiting too much longer in that case. However, I am very aware that depending on the region you live in, the time scales vary greatly. It is on average 3 months in the East Midlands where I live.

Good luck with yours.

Ken

[Hidden]

I don`t think that I have heard of any one getting a decision good or bad yet. I could be wrong with my memory. Could some one help me with this please sue

[TheAuthor in reply to Hidden]

Hi mayrose54

I have read of several members getting DLA for their Fibro. Is that what you meant?

Take care my friend

Ken x

[freya19]

Regarding DLA. I applied 2 years ago. I have Fibro, Hypertension and Tinnitus. I had their Doctor visit me. I received DLA. I have now sent away for DLA again and I am hoping that it goes smoothly. I think that we all deserve it and hope we all get it!! XXX

[freya19 in reply to freya19]

Meant to say that in Scotland we don't have PIP!

[Hidden]

I know people have been on with either good or bad news regarding DLA but I can`t think of any with PIP. SUE

[TheAuthor in reply to Hidden]

Sorry, just seen your other message below. I cannot remember anybody having any decisions made either. Interesting point. If I see any around the forum I will let you know.

Ken x

[Julesq27 in reply to TheAuthor]

Hi I've applied for pip for the first time in my life in June 2013 I had my assesment in sept 2013 in December 2013 I was granted standard rate for both daily living and mobility. I asked for copies of my assesment and found they haven't written all the info I. There and I was 1 point away from the higher rate. I asked for a reconsideration and was granted the higher rate for daily and still standard for mobility. More copies of info was sent to me and this showed all the mistakes they made on the mobility side. I the. Started a fight with dwp and after many calls they asked me to take them to a tribunal. I didn't want to waist my time and energy and tax payers money because they made a mistake that could early be rectified but they just would,don't lists . I called ATOS and after many requests to speak to a manager I was put through the complaintsz dept. a manager there agreed with me and she got their doctor to look at my notes again. He then re done the points for mobility and sent it to dwp. I am no waiting for an update and this was3 weeks ago.

Good luck and don't give up,fight it writte everything I. Your worst day. Get the anOT to asses you and ask them to writte you a letter with your items your struggling with and send them s copy.

Gentle highs x

[Mdaisy in reply to Julesq27]

Thank You for your comment, very interesting as I think maybe you're one of the first people to get their answer to PIP, as their has been a really long backlog !

Now with ATOS gone, who knows if that will affect the wait !

Emma

FibroAction Administrator

[Hidden in reply to Mdaisy]

Morning Emma I am not dealing with ATOS Iam dealing with CAPITA . So far they have appearence of being very helpful and more caring that ATOS who my husband has dealt with in the past. Well we`ll see if it is the case

My claim is being held up due to me becoming ill at the medical. On the insistance of the CAPITA examiner i am now waiting for a home visit Sue

[Stourport in reply to Hidden]

Hi mayrose54 I am a new member . Can u let me know what CAPITA HIS and how do they help people has never heard of this before. I am claiming pip I am on DLA but cus my Mobilay has got worst I told them my Change in health and now I have to apply for pip can. CAPITA help me with this . Hope u are well today and have a good day stour port looking forward to ur reply

[Ginsing in reply to Stourport]

Morning Stourport welcome to the site to help you find your way around there are some useful document links on the right hand side of the page. You can also visit fibroaction.org and you may find a lot of helpfull info there. PiP are running about three months behind in there answering of applications. The hand over does not seem to have been as well structured as every one would have liked

CAPITA can be useful but also look through our site Mdaisy is very helpful with claims.

Hope it is not raining with you

xgins

[Hidden in reply to Stourport]

Morning again I replied to you earlier and it has gone to the bottom of the page. Sorry my fault sue

[Mdaisy in reply to Stourport]

Hello Stourport,

If you would like to contact FibroAction [e-mail] we can send you some information that may help with the process of claiming PIP.

I look forward to your email

Best Wishes

Emma

FibroAction Administrator

[Wilmo in reply to Mdaisy]

Hi Emma. Got turned down for pip with 6 points for care 2 for mobility. Went to tribunal and got reduced to 4 for care and 0 for mobility. Would not like to go though it again, just wanted answers to there questions and because I had been to Malaysia on holiday and Harrogate this appeared to go against me.

[Julesq27 in reply to Mdaisy]

Hi Emma what do you mean ATOS gone? I didn't know anything about this, can you please give me more info? I applied in June and only got an answer in December and this was wrong so now in March I'm still waiting for things to be rectified.

[Mdaisy in reply to Julesq27]

Hello Juleq27,

Here is a few links that may be of interest;

disabilityrightsuk.org/news...

meassociation.org.uk/2014/0...

benefitsandwork.co.uk/news/...

I think the government are looking into other firms to conduct the assessments, I'm sorry I don't know anymore at present.

As soon as I know anything I'll let you know or you may want to sign up for either the Benefits & Work or Disability Rights UK Newsletters as these may keep us up to date I imagine.

Please do email me, [e-mail] for some information guides for ESA if you are about to make a claim.

I look forward to your email

Best Wishes

Emma

FibroAction Administrator

[Julesq27 in reply to Mdaisy]

Hi Emma if ATOS are gone dose this mean that the ESA assessments will now be done by someone else? And who? I'm just about to apply for ESA as I've finished working part item and I can't cope with working and looking after my kids and myself. It would be great to know if they have changes this process too. X

[ladyt62 in reply to Mdaisy]

I'm on dla i no it will change to pip i cant manage with what i get want if they take that as well i do get esa in support group they listen to me so why ain't i lucky with dla

[TheAuthor in reply to Julesq27]

Hi Julesq27

I sincerely hope that you are feeling as well as you possibly can be today? Thank you so much for letting us know how you went on with your application, we all really appreciate this.

I genuinely hope that you can get a favourable outcome on your reconsideration for your Mobility component. I would personally fight for this as it is obvious that you must be really close to be awarded this anyway?

Good luck and please keep us all up to date with how you go on?

All my hopes and dreams for you

Ken x

[ladyt62 in reply to Julesq27]

What do i do wrong i used to get it indefinitely i have polycyistic kidneys liver almost at there worst under active thyroids arthritis all over trap nerve in neck bone bar growing in neck i can only move 50% i cant bend or lift i have the worse case of fibro there is chonic depression panick attacks in public cant get out i have trouble walking carpal tunnel in both hands double joint from head to toes but as soon as i said i had fibro they mobility of me and just get low care £21 a week oh yeh i also have asthma,cold sorry to rant but it ain't fair and i don't no what to do or how to cope with this life anymore

[Mdaisy in reply to ladyt62]

Hello Ladyt62,

We understand your stress due to claiming benefits and the impact it most probably has on your health. I've been there and not long ago got my decision for ESA Support Group, so please hang in there.

If you would like to contact FibroAction [e-mail] we can send you some information that may help with the process of claiming PIP & ESA.

I look forward to your email

Keep strong, the community are here to listen, help and support where we can

Best Wishes

Emma

FibroAction Administrator

[honyman]

Hi hope your having a good day and wish you well in your claim.I Have claimed ESA and was turned down first time so went to tribunal and won now trying for PIP claimed in November and am still waiting for Atos to do medical. I do not need help at home just help to keep my car on the road as it is my only way of getting around as I can not walk that far with out the pain. Let them know just how bad you are and don't let them fob you off if they do go to the tribunal they over ride a lot of the cases in your favour good luck let us know how you get on

Maurice

[Mdaisy in reply to honyman]

Hello Honyman,

If you would like to contact FibroAction [e-mail] we can send you some information that may help with the process of claiming PIP.

I look forward to your email

Best Wishes

Emma

FibroAction Administrator

[vixen49]

Apparently there is a waiting list I rang up about the other day and they said that ive been put it

[Mdaisy]

Hello Amanda2277,

Please can I provide you with a link to our website;

fibroaction.org/Pages/Benef...

If you would like to contact FibroAction [e-mail] we can send you some information guides that may help with the process of claiming PIP.

I look forward to your email

Best Wishes

Emma

FibroAction Administrator

[Hidden]

Hello Mdaisy I am just interested if any body has acctualy had a result with PIP negative or positive. I can`t remember if anyone has come to the end of the prosess or is every one still waiting for medicals or results. Can you satisfy my curiosety. sue

[Mdaisy in reply to Hidden]

Hello Mayrose54,

I haven't heard anything as yet , mostly ESA successful claims. Sorry I cannot help at the moment. I wonder if anyone else will be able to answer your curiosity

Emma

FibroAction Administrator

[Hidden in reply to Mdaisy]

Thanks Emma, but I have a sneaky feeling that no ciaims have actualy been prossesed yet. Hope i am wrong Im in the middle myself of making a claim. sue

[TheAuthor in reply to Hidden]

Hi mayrose54

There is a successful claim for PIP on here now! Somebody has kindly let us know.

healthunlocked.com/fibroact...

It would be wonderful to think that you could also be awarded yours.

Ken x

[Hidden in reply to Hidden]

Hello Mayrose54,

Regarding PIP-I had my atos assessment the last week in March this year.I got my brown envelope less than two weeks later! I got standard care daily living.Although I thought I would have got even low rate mobility.I am quite pleased with that.Its the first benefit I have ever claimed for.iam fifty something.I have Fibromyalgia ( with lots of things that go with it ) and arthritis in knees. I still work 28 hours in a school , but have asked for a reduction in hours.

Thanks

C14KAR

ps I live in Scotland.

[chris69]

I have osteroathrtis lumber spondotsis in my spine and now firbomyalgia really painful everyday im on dla full mobilty put my renewal form in begining of january got a call from some woman asking me questions I had already done in my form, thought it was a bit strange so called dla next morning to be told they stopping it in april, told them I wanted it looked into they asked me to send in all information reguarding my illness then got a letter teling me they requesting doctor report, which has sent back now waiting for a decision, the doctor has told me I have a disabling condition..its bad enough having pain everyday with all the stress dla put oeople through is awful

[Mdaisy in reply to chris69]

Hello Chris69,

Sorry to hear that your stress of this recent claim may be impacting on your Fibro symptoms.

If you would like to contact FibroAction, [e-mail] we can send you some information guides that may help with the process of claiming DLA renewals

I look forward to your email

Best Wishes

Emma

FibroAction Administrator

[chris69 in reply to Mdaisy]

Ok thank you

[Fibrofoggy14]

Hi Amanda2277 - I agree, its a shame they dont read our comments then at least they would have more idea on what we are all going through.Would you know if the people who assess our claims are actually medically qualified to do so? Fibrofoggy14.x

[Hidden]

Thanks every one who helped to answer the question. has any one been fully asessed for pip yet it seems the answer is yes. unsatisfactraly true. but they did get an answer and i hope that they finally get what they are entitled to Good Luck julesq27 sue

[Julesq27 in reply to Hidden]

Thank you sue x will let you know my outcome when they finally get in touch. It's been now 39 weeks since I first applied. X good luck to you too and I hope it def dosent take this long x

[booohooo]

Hi mayrose had assesment for pip which is gonna b another name for dla dec 3rd got letter last week from dwp saying av just got my info and are dealing with claim asap will let u know the outcome boohoo xx

[Hidden in reply to booohooo]

Thanks I wish I could have completed the medical at their offices I was willing but the asseser said that I was in no fit state to continue. and to book a home visit. Trouble is I am still on tender hooks waiting for the visit. I wish it was over with sue

[Hidden]

Hello stourport. capita does the same job as atos in medically asessing people for benefits. In the b`ham area they do the pip assesments. my hubby and i have had dealings with both, and capita seemed to be more helpful and caring than atos. I am now awaitng a home visit so we shall see. I am still sceptical as to weather they are more caring, or it is a ruse to trick you. If you have any more questions please ask. wellcome to the site hugs sue

[bvlgari]

Me too,Capita have taken over fron Atos who have pulled out,had a letter this week saying someone would be in touch to have a medical assessment.

[cowsrock]

Hi

I have just yesterday been awarded pip standard rate daily living component, no mobility though, but great to get that after three atemps and one appeal

So yes it can be done it is not easy and I do have other problems to.

Cowsrock x

[TheAuthor in reply to cowsrock]

Hi cowsrock

I sincerely hope that you are feeling as well as you possibly can be today? I think that is wonderful news! Congratulations on getting your PIP.

Take care

Ken x

[Lottieonline in reply to cowsrock]

Hi cowsrock

Pleased to hear you won PIP standard rate living but confused you never received any mobility. Do you suffer from fibromyalgia ?

[Wilmo in reply to cowsrock]

Hi recently got turned down for pip initial and appeal through tribunal. Horrible.

[releasethemagic]

Capita won the DWP contract todo the PIP medical assessments in some regions and ATOS won the contract for other regions.

FOr ESA ATOS won the contract for the whole country but they are to be replaced. In the meantime ATOS will continue doing the ESA assessments until DWP go out to tender for a new supplier. ATOS will continue with their PIP contracts.

[Cheesedoff]

I don't know what PIP is ?

[releasethemagic in reply to Cheesedoff]

PIP is Pesonal Independence Payment. It is replacing DLA - Disability Living Allowance which is being phased out.

[Claris1]

I have applied for PiP in July 2014 this year, and i was sent a letter that it would take up to 26 weeks to process. I found the paperwork really confusing and got in contact with a local disability center who was able to help me fill out the form. I was in there for about 90 mins and was so mentally exhausted that when i got home i had to have a nanna nap, before i picked my daughter up from school. I was so irritable because i was so tired that i was in bed for 8. Not sure if its ATOS of Capita doing the assessment in my area (Lancashire).

Since this post originated has anyone won their award for PiP?

[splodge1]

take your medical evidence to Cab THEY HAVE INFORMATION the DWP dont tell you about for your eligibility. let them help you , you have more chance of winning