Any one else disappointed that they w... - Fibromyalgia Acti...
Any one else disappointed that they woke up
sometimes.
No never
Only once. Rotten pain control by hospital staff after a new knee. If someone had said "we can fix it but you'll never wake up" I'd have said "yes". How they stayed sane before anaesthesia I'll never know
Like the tag. Has it helped to get a diagnosis? Gentle hugs 
Hello Ellablade,
Feeling low & depressed is normal and I think we all have felt this way at some point. Have you spoke to your GP about your feelings? You may need to discuss your treatment and may benefit from some counselling maybe.
We all understand here and we will always listen. If you need to speak to someone you can ring the Samaritans, here is the number;
0845 790 9090
Thinking of you
Emma
FibroAction Administrator
ive felt like that since being a child and yes im now under a psychiatrist, at long last a nice one but it dosent take away how I feel this fibro,arthritis etc has just added to it I often wonder whats the point well I just remind myself I have 3 wonderful children (all grown up now ) I made a promise that im trying sooo hard to keep, being useless and becoming less able to manage is becoming a huge problem ive collapsed a few times ,I live alone I don't see my kids very often they work and don't live near plus im not there problem I don't want that I feel very confused at the moment.xx
hi there I feel very very sad for you! to be in that black hole is sooooo bad, especially when its everyday of your life. my heart goes out to you, unless one has experienced it they have no idea, then to have these other issues it makes life very hard. I am delighted you have a good psychiatrist and I hope medication that makes it bearable.( unfortunately whatever caused these feelings in our child hood are well entrenched in our brains) I like you don't want to burden my children, who all live overseas, I am scared they wont call me if I am always negative. are you able to get any help, or perhaps someone live with you? I am a great believer in being kind to myself, having lots of rest and pacing myself. take care
i was beginning to feel that way when i was forced to give up my job & wasn't at the time being treated properly, just waking up thinking whats the point, when all there is to face is another day of agony...then i got cancer & i realised i wanted to live,i wanted to get better i didn't want to leave my family. so with a massive succesful operation & a positve attitude which my consultant says helped thats what i did.then i was sent to pain clinic who diagnosed fibromyalgia. & given medication iif you're feeling so low i really think you should see your g.p,i mean i don't no yr situation but we're all here to talk to on here & others can probably give you better advice than i can but mdaisy zeb & ginns always give very good advice & it really does help to talk,theres also the samaritans & others you can talk to,please get help,wishing you well x
I have to answer NO to that one, no matter how low I get. But I have often felt very low and were it not for the support of family and friends maybe I would think that way...
I reached a very low point when my Mum passed away three years ago, but went to counselling on the advice of my GP and it did help.
Emma has given some very good advice and the people on here are very supportive.
I do hope you will see your GP or talk to a friend, family member or someone you trust or the Samaritans.
I see from your last post that you were going back to work, is it too much for you, that happened to me and I was feeling really bad and overwhelmed. Do PLEASE talk to someone.
I wish you well, do stay in touch.
Hi ellablade
I am so sorry to see that you are feeling so low and depressed. I think it is quite normal that when you constantly get so much pain that it will eventually drag you down with it. I think the key is to think positive, of all the good times when you weren't feeling too bad and when you had fun and excitement with the people in your life that mean so much to you.
If you ever need to post a friend just post to me. I promise that I always read all my posts and reply.
All my hopes and dreams for you.
Ken x
Yep good days mainly bad so fed up
Yes ellablade, I do. I'm sorry you are feeling so low, it's a horrible place to be. You really do need to talk to your Dr about this though. I am under the care of a psychiatrist and I see a therapist weekly, and take medication too. A lot of it is pre-existing because I suffer from bipolar, but it is bad at the moment because my physical symptoms from Fibro meant I had to give up work, home etc and that took its toll on my hopes for the future.
Mdaisy is quite right, Fibro can leave anyone feeling rock bottom, pain is consuming and it's hard to see outside of it when it engulfs you. But there are so many things out there that can help you, and make you feel better, and it's really important that you reach out and get some help immediately. There are so many of us on here that will listen to you night and day if you need to talk to someone. I often seek out Fenbadger, Fibrofoggiest, zeb73 and gins because they get all giddy and have funny conversations that cheer me up, they also, as bluebell10 says, talk a lot of sense and give great advice, and theauthor and Mdaisy are really supportive. Do keep talking, but do go to the Dr too, it really is vital honey when you feel this low. Hugs and thoughts to you xxxxxxxxxxxxxx
No! Fortunately I have never felt like this. I often wake and think - oh dear, is it really time to get up?? I may not be in perfect health but at least I DO wake up every morning. There are so many people worse off than I am, and sometimes that doesn't matter, depending how I'm feeling, but life is good! Even when I lost my husband 8 years ago I never felt like this. Yes, I wanted to be with him, but here on earth, nowhere else!
I hope you find something or someone that makes you smile every day.....XX
It depends what you mean. If you mean you did not want to ever wake up- I have never felt like that I have a tremendous spirit for the day.
Now if you meant you were dreaming a dream that was exciting and you did not want to leave the field of play, well how different I find myslef holding on to said dream and encouraging it to follow on as some times those dreams lead to smiling happy fantasies.
I do wake very early daily and managed twice to sleep in, then spent all day catching up.
xgins
Hi Ellablade,
Sometimes. I really do.
Other times I feel a little stronger and think to myself - F**k it - this illness is not getting the better of me.
What is important to remember is that we want you to wake up.
We want you to post us about your pains, about your difficulties, about the silly things that happen each day. There are hundreds of us here willing to listen every day.
We will not....
We will not judge you.
We will not be upset if you want to tell us how hard your day has been (I cannot discuss my pain with my family - it is just such a miserable subject and it is the same day in day out - nothing interesting to say again today and so on)
We will not say "oh shut up you have said that before, I am bored of it, you just moaning"
We will not say - "you are just lazy - pick yourself up"
We WILL
We will say - "i know what you mean "
We will say - "how are you feeling"
We will say - "how are you coping"
We will say " this is broken on me - help / advice? what do I do?" and hope YOU reply / help us
We will say - " did you hear the joke about....."
We will invite you to virtual parties and virtual day trips, because we too are stuck in bodies that are faffing around and fritzing and in pain and doing all sorts of odd things that stop us from getting out and about as much as we would like.
Hi ellablade, I am so sad for you that you feel so desperate!! In answer to your question, YES, unfortunately I have felt like this and I can totally identify how you feel at this present moment in time!!
As I felt I did"nt want to wake up, or could"nt cope with yet another day. This was only Christmas last year and the New Year, so it is so fresh and painful in my mind!
No-one can possibly understand how desperate you must feel to have these dreadful,un- controllable thoughts. I empathise with you, I don"t want to sound condensing but totally sympathise how depressed and at the end of your tether to feel so desperately low!!
I was very fortunate when it happened to me recently (it has happened before to me in the past!), that I am under an excellent Psychiatrist (Psychiatric Services as had a break-down few years ago). My husband contacted Psychiatrist expressing his concern for me state of mind, the Psychiatrist intervened and I was fortunate enough to get the much needed help the very same day.
I don"t know if you are under Psychiatrist, if you are I would URGE you or a relative to contact them for help for you as soon as possible. If not like the other members suggested the Samaritans are good to talk to in a crisis!
Do you think it is a good idea to talk to your GP, if you feel able to and perhaps they could refer you for Counselling ect?
OR you can ring the Psychiatric Crisis Team @ Local Hospital and refer yourself, to speak to a Professional. There is always a "Duty Officer" on duty to deal with people who feel the way you do. If there is not one at your local hospital, they will give you a number or pass you on to the relative people to speak to.
When I told my Psychiatrist I just did"nt want to wake up, he told me I was showing signs of Suicidal Tenancies! (In fact I did feel suicidal at the time) please don"t be alarmed I was"nt carted off to the nearest Psychiatric Ward for admission (that was one of my worse fear!). Instead I was able to get valuable help in the Community, allowing me to stay in the safety of my own home!
I could see no way out Christmas Time and like you I prayed not to wake up of a morning or indeed any time I woke up!
I am so grateful to all those who helped/still helping me. I am so relieved that I did"nt do anything Stupid! (As I had planned) and I am still here today to tell the tale.
It is a difficult life, living with Fibro and all that goes with it!!
There are also some wonderful members on this Forum, you can speak to, with lots of knowledge, experience, support, strength and hope of offer. They have been a God-send to me in the past with advice and sipport!!
Please seek some help, I promise you there is a light at the end of the tunnel, even if you can"t see it for yourself at the moment. Life is so precious, can you imagine the devastation you would leave in other peoples lives who love and care for you!!
You are in my thoughts and prayers. I wish you all the very best. Post again to keep us up-dated. I will reply again if I see another post from you. Sorry mine was late reply as I don"t always check mail daily, especially if having difficult day.
Take care of yourself and don"t feel guilty or beat yourself up how you feel, it is not your fault, its just you are not well at the moment. I pray you feel little better soon.
Sending you positive healing energies.
God Bless Betty baby. X
Every day.
DOES ANY-ONE ELSE HAVE TROUBLE WITH FOCUSING (EYES)
Any one around
Is anyone fed up being told they look alright, even that they look well??
Does any one no ?
