Is anyone fed up being told they look... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Is anyone fed up being told they look alright, even that they look well??

shazzad profile image
12 Replies

cos i get told that and i hurt so much and drag myself out of bed some days...

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shazzad profile image
shazzad
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12 Replies
sarah111 profile image
sarah111

Yes i do all the time Shazzad,and what makes it more fustrating they make you feel like your putting it on for attention or somethn.I have said the way i feel an just get looked at as if iv 2 heads and then it gets to the stage i wont say coz i feel they dont believe me...then when i dont say they think im alright and im asked to baby-sit eg....ya cant win no mater wat way ya go with this illness :-(

oh yes, even when I was having a carers assessment, the carer told me she was suprised how well I looked considering everything I had wrong with me, I do try if I go out to look nice, my 2 daughters make me try to keep up my standards, when I cant I stay in

getactive profile image
getactive

I know this is so frustrating makes you feel guilty for feeling rough take care xx

bbfreak profile image
bbfreak

Absolutely! It was even written on a medical report for incapacity benefit a few years ago that I looked healthy and well groomed, and was marked down for it! I feel so much better when my hair and make-up are done, and I refuse to let myself go! Keep your chin up hun. X

Catsrule profile image
Catsrule

I agree with bbfreak, because I work 3 days a week and keep my self well groomed then people do not realise. I must admit I don't tell people that I have something wrong with me. I admit I probably fake my happy disposiiton 90% of the time! My 5 year old son struggles to understand that I can't do things and it's not his fault that his mummy is not well some days. However, we have to keep smiling :)

I try to avoid people now cos fed up with people saying that.

I went to my old work a couple months ago with the cat(i worked in a vets) ans had a friend take me and carry the cat cos i was using crutches as i could barely walk. No one had seen me for a year yet they all said how well i looked.

I hadnt washed my hair and put a dress on cos easier to do than jeans etc and had crutches. Made me feel like they never really looked at me before if they thought i looked well.

But try not to let it get to you, after all stress will make you feel worse.

gentle hugs.

westgate profile image
westgate

i have learnt the hard way. i sometimes say - good job youre not a doctor - cos you clearly dont know s**t!

Grrrr xx

Yes, I'm fed up of this, especially with people who I've explained my condition to - I respond to them 'I look well but I'm not, it's invisible', in turn I can get, 'you looked worse last year' as they want to prove themselves right, or I've had things said to me like 'we all have something' - 'I never feel refreshed in the morning' - 'we all get tired' - or on talking about my cognitive problems someone once said 'I call it a senior moment' they don't understand and try to compare themselves...... which feels hurtful and dismissive. They can tend to step back when pain is mentioned. I don't speak much about my symptoms anymore......

on my atos medical, its was said I was well groomed, and intelligent what the hell as that got to do with being ill, also at my dla tribunal the panel told me I didnt look ill or in pain

Kasha profile image
Kasha

Sometimes I tell myself I'm not going to mention it, I'm not going to tell people but then I find..I cant walk that fast...or cant manage a trek around one more shop.....or cant go out for the evening when Ive had my grandson all day! so I cant help but mention my pain or tell them how im feeling and then I see my friends look at each other as if to say "shes moaning again" people just dont understand and never will :-( I'm finding myself more and more turning down things because I dont want to put myself in the position where I cant cope and people know I cant cope. I just go on pretending everything is ok and that the inside feels as good as the outside looks!! :-(

demelza profile image
demelza

i no a girl who was turned down for D LA because she had dyed her hair blonde and the doc said she looked ok shes allowed to just like any other person is x

willowmuse profile image
willowmuse

Oh yes I get this too, worse for it are my own family!! Mother thinks if i got out of the flat a bit more and got some fresh air then all my ailments would disappear..........I wish, give up explaining now, i have an aunt whos constantly on at me to go see her, and gets quite annoyed when i say i cant. Really fed up with trying to please everyone now, wheres the help and understanding when i need it..........................................xxxx

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