Hi, I haven't posted in a fibro forum for a while as I have been "managing" it for a while but now feel pretty raw in more ways than one.

[lemmi]

My fibro diagnosis was not easy, as I'm sure is the case with most of you. I was pushed from specialist to specialist from an early age who could never find a problem. I was finally diagnosed with fibro in 2000 but my GP at the time failed to mention it and I only found out by accident when reading a copy of my medical records in 2007! As you can imagine I was pretty angry. I didn't hold a grudge finally came to terms with it and got my head around it (knowing what's wrong is a big help even when you can't do much about it) in 2011 I collapsed and was then also diagnosed with arthritis and M.E. I again came to terms with it and was coping then last year I got sick and taken to hospital where they discovered I had endometriosis, I've had surgery (a month ago) to remove the endometrioma, adhesions and unstick my organs from each other (was a bit of a mess) and was struggling a lot with pain in one side, nausea and dizziness. My GP did some blood tests and kept signing me off work and then finally said "well I've looked through your file and you've seen a lot of specialists and they didn't find anything wrong so I think it's all psychological and you are putting my yourself through unnecessary expensive surgery"! I then informed her that 2 days before I had seen my endo consultant who had said there is more dame in my abdomen to nerves and tissue and that my sciatic nerve is tethered which will cause a lot of pain and nausea. She didn't listen and thinks it's all in my head. Sorry for the long post I guess I just needed to vent x

[lemmi]

By the way I'm 29, the and not on any pain meds as I'm allergic/intolerant to most of them

[Hols15]

Sorry to read all this. I'm 27 and self diagnosed last year before having the doctor confirm it. Sounds like you are having it hard at the moment I hav no advise to give as I'm still not "managing it" I've just had a moan as we'll so you ain't alone x

[Fibrofoggiest]

Golly wow, it sounds like you really have a lot to vent about, I am horrified at the way your GP spoke to you, I think under the circumstances I would be looking for a new doctor, failing that put in a formal complaint about her manner.

I know some GP's are sceptical about Fibro, but you most certainly wouldn't have gone through all that you have, just for nothing. Could I ask if you had your treatments done on hthe NHS or privately ? your post implies it might have been privately, nonetheless you have clearly had proper diagnosis from specialists, especially with the endo consultants recently. This really would make me want to reassess my relationship with the GP.

I wish you luck and am sending positive healing vibes your way

Foggy x

[lemmi]

It was a GP that until that point had been great. NHS by the way, can't afford private x

[fenbadger]

Wow. As if you don't have enough to put up with, an unhelpful doctor, too. I think I'd be changing. I have trouble with analgesics, too. They just don't work, even opiates. Without what you already got I gather that can run alongside Fibro, too. Sounds like you're good at hanging in there! Brilliant.

Ps. I really don't get my money's worth with morphine, don't even hallucinate

Gentle hugs

[TheAuthor]

Hi lemmi

I am so sorry to hear of your current plight (and past) and I sincerely hope that you start to pick up soon. It sounds like you have had a torrid time with doctors and the NHS. If I were in your shoes I think I would start the process of finding a doctor who is a little more sympathetic and understanding to your situation. I know it won't be easy but at this stage I think that you have nothing to lose.

Good luck for the future my friend and I sincerely hope that you can achieve some resolution.

Ken x

[vixen49]

I am so sorry to hear you went through all that it seems like they were trying to fob you off hunni warm hugs to you Sept 19th last I was diagnosed with fibromyalgia by a jr doctor and my doc