Fibromyalgia

[jayneharrisx]

Hi I'm Jayne and I've been diagnosed with fibro, I've been ill now for almost two years. Because of this I've given up future plans, education and hobbies as I'm in constant pain. My mam told me to look at this website as I could get some good advice on how to cope with the pain. Thanks x

[jillylin]

Hi Jayne,

your mam has lead you to a great place for support, information, etc.

Gentle hugs

Jillyxx

[Bearess]

Hi there - welcome to the "wonderful" world of fibromyalgia

Horrible syndrome - but you can chat to some understanding people on this site

[Angeldancea812]

Hi and welcome. The people on this site are really caring and usually one or t'other can help you and understands exactly the position you are in, so count yourself at home.

[jayneharrisx]

I'm only 18, I had to quit my child care course due to my illness and I have quit several jobs. It's a terrible thing x

[Fibrofoggiest]

Hi Jayne, I will ad my welcome to those of the other members, this is one of they best places to come for support and information. Our mods and volunteers work very hard to keep everything as it should be.

We have several members of your age, so don't feel lane on being young, just join in and you'll soon feel part of everything.

We have some posts which are designed to lighten people's load of only for a while, and there are some of us who are more than happy to be completely stupid and have fun conversations, so do please feel welcome to join in at any point.

Best wishes and a big WELCOME

Foggy x

[Hidden]

Hi Jayne

Your mam definitely sent you to the right place

Whether you want to have a good old rant about how unfair it all is; you want to ask a question about something or, as Foggy says, you'd like to lighten the load a little and have a giggle, it all goes on here

Wishing you a very warm welcome.

Coz xx

[ladytelita]

Hey Jayne, please please don't give up all your hopes and dreams because of fibro. It's a horrible thing to have at any age and a big shock. Given time and a few mistakes, suitable pain killers and therapy can really help. Learning to pace yourself is a big one (I'm still learning that one) and to not feel guilty if you simply cannot do it some days. You sound so down. *careful hugs* Rant away all you want, we're here to support you through it. We also have a bit of a silly streak which is always good for a giggle.

P.

[janlou]

Hi, Welcome and we are all here to help.

Jan x

[Cookie72]

Hi Jayne, welcome to The " Fibro Caring,Listening,Fun Club " you have found the right site to come to, there is always someone here to listeni to you if you have a problem, or want to rant and rave, we are here for each other, look forward to reading your posts, sending gentle hugs to you.....Dee x

[jayjay57]

Hello Jayne

Welcome to our Fibro Club, it's a great place to be, will help if I can, everyone here is great. All of us work hard to try & give anyone the best advice to all questions, the Team & Volunteers work hard to keep this site up & running.

Gentle Huggs to you x

[Ginsing]

Morning Jayne,

By now you will have realised there are lots of good caring people on this sight. So please have a look around and see what you can find out from us all. Good information about Fibro can be found on Fibroaction.org.com our mother site we are always available to answer questions or try to.

We also have fun and games usually these are pretty silly but fun hope you can enjoy them with us.

If you have any problems you can always message me so enjoy best wishes .

xgins

[Tomcat98]

Lots of us have lived with Fibromyalgia for years, you have to learn to pace yourself and say no when you are feeling bad. The worst thing is that people with Fibromyalgia often look well and no one understands how rotten you feel just trying to cope with the pain and fatigue.

[Nicky07]

Hi Jayne , I am Nicky I am only 34 and got diagnosed with fibromyalgia 3 years ago I have been in pain for over 5 or 6 years now can't remember when it first started I have had blood tests every year since the pains started to rule out everything else then finally got told I have this horrible disorder I have really bad depression and sciatica and rest less leg syndrome I am in pain 24 hours a day and the tired all the time I would love to go back to work but I can't even do house work with being in so much pain , I just wish I had people in my life that understand what I am going through I hate having to explain myself all the time........

[haribo36]

Hi Jayne,iam also a Jane.Dont give up on all your plans and hopes,yes you may not be able to fulfill some but iam sure that in time you will be able to achieve some.Some ways of helping you cope with the pain are pacing yourself,trying out various combos of meds till you find the right ones,CBT counselling which you can get referred for through your g.p,some gentle exercises,managing your stress levels,healthy eating,asking your g.p to refer you to a pain management programme as well.If you look through fibro actions pages on here you will find lots of info on all these things.I have found massively that it has helped also being on this site reading other people's messages and talking to others on here.We are all individual so what works for one may not work for another,I think it's important to remember that also.Hope you have a good day,also it does help to read up as much as you can about the condition but be aware of sites that say they have a cure for fm as more often than not they are after your money,hope this helps x

[bikerchick54]

I dont mean to sound harsh but Nicky07 I dont understand WHY you have been having blood tests as these do NOT show if one has fibromyalgia or not. Only a Rheumatologist can tell you if you have it and just by asking simple questions etc.

I very very rarely have any problems because of one simple thing that I take but I am not allowed to share this on here. My fibro is mainly in my left hip which had me on crutches for a long while but then I started on this stuff and I'm great now

I have 2 Dobermans and go for long walks (5-7 miles plus) with them so if I can do it so can you lot.

[Jess35]

Hi Jayne,

I am so sorry to hear that you have this dreaded affliction, however, please do not give up on the rest of your life. I am now doing my second degree at university which involves a lot of driving and a lot of standing, as training to be a nurse, so things are possible. FM does not define you, it is simply part of you. Allow yourself the time to accept your condition, how you want to deal with it and if you find the strength and defiance (if you're like me) to not let it get a hold of you, then life can continue.

Wishing you the strength to see the positives in you xx

[charlie_red]

Hello Jayne,

Sorry to hear that you are in so much pain. Like yourself I was diagnosed with Fibromyalgia at 18 & I am now 23. Please don't give up on your dreams and aspirations. I too studied child care and have just finished my masters in Psychology. I found it very difficult to manage and balance my pain with going to Uni and studying, however my university was quite helpful and I had a support from Enabling Support who helped me apply for Disabled Student Allowance, which is funding that allowed me to buy a new computer and technology to help with my studies. I also got extra time for exams and coursework as they new I couldn't always sit at the computer for hours.

Have you been to the pain clinic? My GP referred me and they have been great too. They can alter your pain medication and can offer new treatments that you may not have tried before. I have been to acupuncture, physiotherapy, I have had steroid & aesthetic injections and they also offer psychologists too.

I am still trying to manage my pain, but it does get better once you find the right combination of treatment. Everyone is different, what may work for one person may not work for the other. But I believe it's worth trying everything as it may work for you!

Feel free to send me a message if you want to chat, I understand how frustrating it can be, being so young and suffering with this illness. This website is great and I have found it very supportive!

C x

[sarahmcg]

Hi Jayne, I might be a bit older than you but I have fibro. Don't give up I just completed a degree, its not impossible and you can get help. My daughter who is 18 has it to and she is studying music. Make sure you pace yourself and don't be afraid to tell people your having a bad day don't keep it all inside. Love and prayers to you and your Mam xxxx

[Hidden]

Hi Jayne,

I hope everyone has given you food for thought and helped to put things into perspective a bit. Everyone is different and therefore responds differently to particular meds or has different abilities to live with FMS - often these are dependant on any other co-morbid conditions that us fibromites have to deal with, because they can exacerbate symptoms - this is another thing: not everyone has every symptom - they are very individual too. It will be a bit of a learning curve at first but you WILL get there... you will find your own balance and ways to improve things; your ability to know when to rest and when to continue; where to find help and assistance and more importantly that you SHOULD take advantage of it where you can.... the last kicker is guilt and with your emotions all over the place from this, you should not feel too afraid or feel that you are weak by asking for some counselling to help you get to grips with things.

I wish you well on your journey and keep in touch with the guys and girls on here... they will help you (and give you a laugh too). Try to keep of positive mind... it makes a world of difference!

Take good care of yourself...

Gary

[Matrix]

Hello Jane ,when I read your post I said No No No. You cannot give up your hopes and dreams you must not ,you will learn to cope and you need to have hope.I have had this disease since I was 12 now 61 I have been where you are desperate ,I know pain very well but I know this too ,keep moving get a hobby that you can do and my biggest tip after you have grieved for what you have to give up Accept its the biggest thing you can do for yourself .I have had 3children and that was hard but wonderful ,managed to work for short periods ,now have many other things wrong can no longer work but still I accept and have hope and that's what you must hold onto.All this is said with love not meant to sound stern but from my heart don't give up ,I nearly did and I would have missed everything I hold dear now .Hang in there be praying for you .xx

[panther237]

Hi Jayne, after reading your post it sadden's me to think that someone of your age has this horrible condition. I also think that your young enough to conquer it too, please don't give in to it or it will rule you, carry on with your plans and show Fibro that it WILL NOT drag you down. Just remember you are a beautiful strong young girl who will grow into a beautiful even stronger young woman with a future (fabulous career and prospects) so don't become a victim Be a fighter. Good luck in your future and all in here look forward to hear a lot of positives in your life and how you kicked Fibro's butt. You sound like a lovely person so don't let that

change with this horrible condition. YOU CAN FIGHT IT. Gentle Hugs Xx

[Ickleangeleyes]

Hi! I'm sorry to hear you have fibro. Please don't give up hope, it takes a bit of time after diagnosis to get the right combination of meds. For example: I was given pregabalin the first day I met my new rheumatologist which help a bit, so when I next went he doubled the dose which helped more. Also have you tried other ways to relieve the pain? I use heat packs, frozen peas & topical applications such as Bio Freeze or Tiger Balm. Keeping active will help stop you stiffening up, I don't mean going for a five mile jog or anything that strenuous even going for a short walk each day will help. I hope you get some relief soon. Good luck & best wishes

[dottyboro]

Thanks guys jayne does try but it does get her down she is training at the moment but still get so tired and at this moment in time they have given her meds to take if and when as she wouldnt take any thing at first,but im sure with the help of you all she will get there i know she is ready all these so chin up jayne and good luck and thank you to you all JAYNES MAM xxx

[dottyboro]

jayne has been really poorly this week she fell last week and hit her head even though we have been to a&e she has had a headache for a week now .I am so worried about her she is getting so stressed out not having a job and still on her last level of a hair dressing course,i think she has done so well but so wants a job as well i really wish she would give herself time .She has slept all week and only got up to go to college although did persuade her to go for a little walk with her boyfriend last night please can anyone give me some advice she is so stressed i think if she had continued with her phsio it would have helped but she wasnt comfortable going .Please help Jaynes mam xxx

[Ginsing]

Morning Dotty,

I have read through all the posts and bless her she does sound very stressed. What to do will she increase her water intake that will certainly help. When has she had her eyes tested last it may be she needs them checked. I know when my head is bad it is often weary eyes battling to focus. So may be an appointment

I would suggest also no chocolate and no orange juice or oranges also cheese.

I hope this helps. If it is very bad ice packs /warm packs and back to the doctor,

Best wishes

xgins

[bwaite]

Jayne I was diagnosed 10 years ago I've had ups and downs but

This last two months I've been out of work. It seems to have gotten

Much worse going to pain clinic in 3 weeks. There doesn't seem to be

any rhyme or reason for the highs and real lows. Just organize your

Life as much as possible and keep trying different advice. Never give up

Your hobbies or dreams! Hang in there

[Hidden]

Hoping that this gets to someone,don't know if I'm doing this right,I'm scottydog,I'm in such a state,I'm in so much pain everywhere,I'm so worried,I also have copd,no one understands don't think the doctor does either,is there anyone that wants to help ??