Fibromyalgia

Hi everyone

I have never spoke to anyone about my illness before I have fibromyalgia under active thyroid ibs arthritis in knee hip and ankle depression and anxiety I was diagnosed with fibromyalgia in January and its been a hard year as I didn't understand the diagnosis I've never heard of fibromyalgia or no anyone who has it so have no one to talk to I feel alone my friends and family try but they just don't understand the pain I'm in when I say everything hurts I mean everything it hurts so much someday I feel like I've been hit by a bus I've joined this support group to talk to people who no how I feel

10 Replies

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  • Hi lulujames . Welcome to the forum. I'm sorry to hear that you are having a difficult time. This site is a great source of valuable advice and great support. The people on here know how you feel and many of us share the same worries and concerns that you have. Please don't feel alone, family often don't understand how we feel, as they are not really listening to our words because they maybe get used to us saying the same thing! Showing them a fibromyalgia website might be a good idea. Hope you enjoy our site and look forward to seeing you on here. Someone from admin will give you info about the site. Take care.

  • Have you herd of the spoon theory? If not look it up. I made my husband read it last week so he can have a slightly better understanding of what it is like to be us. I have found it a very useful tool to help people realise what we go through.

  • No I haven't I will have to look it up thank you

  • Hi lulujames

    Just like to welcome you here ! I to was diagnosed at the beginning of The year, although have been a long time suffer..it is one of those illnesses that does take a long time to come to terms with.. this forum is the best place to be for the comfort and advice needed. Best wishes,, Steve

  • Thank you all for your lovely comments

  • Welcome to the group, the strenght is that we know a bit of what you are going through but we are also able to be a little silly which helps. :-)

  • Yes your right betty when your feeling low it's nice to see a smiling face thank you

  • Hi lulujames

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun!

    I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information: fmauk.org/

    I am so genuinely sorry to read of how your are suffering and struggling with your Fibro, and I sincerely hope that you can find the answers that you so desperately desire and deserve. The website link will tell you about medication to disability benefits and may come in handy during these early stages. I want to sincerely wish you all the best of luck.

    All my hopes and dreams for you

    Ken

  • Hi Lulujames

    I've just joined the group and totally understand how you feel. I was digonosed 18 months ago and don't really understand it. I've cut my working hours to 3 day apart. Some days I just can't move without pain. I've just lost my dad and auntie in a couple of weeks of each other.my dad did everything for my mum. I've had to arrange the funeral for my dad and sorted out banking etc for my mum. This morning I woke up unable to move the pain so intense. No one understands the depth of it.the spoon theory is goody husband sort of gets it. But other people and work aren't the same.

    Even my doctor doesn't get it or my rhemy so it is hard when professional do t understand how are we mentioned too. Gentle hugs hun xxx

  • Thankyou I'm so sorry to hear of ur loss my dad is my world and best friend and I couldn't get imagine being with out him so I'm sending big hugs and love to you. I looked at the spoon theory last night thanx to another person on here telling me about it and it made me cry and I showed my family and they cryed to its a perfect way to explain how u feel I used to be able to everything before now I struggle to get dressed some days it's horrible I feel like my life has completely changed I can't do hardly anything I used to and my independence has gone confidence everything I'm here if u need a friend hun

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