I am so angry and tearful today! The GP's are rubbish the only things they say is ''I can't help'' or '' what do you want me to do!'' Rung my pain management team 20 times in 6 weeks now! finally got through!! My infusions are suppose to be every 6 weeks maximum! I am lucky if I get them every 3 months!! After the one in August (I PRAY THEY GIVE ME THE RIGHT DRUG THIS TIME!!!) I will be waiting until December until my next Infusion.
This is not good enough!
The NHS happily treats old people! What about young people! They are not bothered. At 20 I am crawling up the stairs in pain, sleeping on pillows, coming out in black bruises daily. Unable to socialise, am walking worse than my 80 year old nana with hip replacements and having to have OT assessments! I have had enough NHS you are shocking! PALS IS CRAP THEY NEVER ANSWER THE PHONE!