I was wondering if anyone else mainly suffers from the fatigue,I don't seem to have much pain that I can't put up with

[Twix]

But I feel I could collapse as I am so tired,just wondering how others manage

[basketcase54]

im sooooooooooooooooo tired all time sleep till 1 or 2pm afternoon and still could sleep longer my doctor says its my tablets and has started to take me off them but now im suffering terrible pain all over again when on all tablets not much pain that i can cope with now im driven mad with pain

basketcase54

[pondminstrel]

hi pet,i can sleep for ever!..especially if iv overdone it the day before..so I used to get mad cos id missed a day,but now I look at it as my body recharging its batteries..so I just listen to my body...by the way it was 5 this afternoon I woke up !!!! lol..but I have a 90% chance of being ok tomorrow...xxxzzzzzzzzzzzzzzzzzzzzzzzzzzzzz

[Twix]

I find it very difficult,now that it is the school holidays,my kids are wanting to do things,and I am so tired and exhausted

[crissy]

Im tired all the time i have to sleep every afternoon for a few hours

[Ginsing]

I too have the regulation afternoon nap one to two hours with out which I am grouchy and my hips go. Having said that every day differs in some way - so many variations xgins

[ladymoth]

I'm the other way round!

I get tired more easily than I used to, but my main problem is pain. I actually cope better with this than I would do with constant exhaustion, because when I actually do have an attack of 'fibro fatigue' I feel as though I've run into a brick wall!

Moffy x

[Hidden]

Hi

I am a bit like this, generally my pain isn't too bad although I am on slow release morphine twice a day, that said though I think I am having a flare up at the moment, but the fatigue is horrendous.

For me it is the worst symptom because it affects what I can do and I am someone who likes to be busy and accomplish things and the fatigue makes this tricky. I have always found relaxation hard and I really resent the fatigue takin away my ability to do the things I want to do. I do not pace myself well either and this makes things worse. I get carried away on a good day and really pay for it the next lol.

So I really understand where you are coming from. Fibro always gets you one way or another.

[kasp767982]

My pain is controlled with meds, so pain for me is managable

However, the fatique is something else & the 'fog' is horrid too

[LucyKris]

I went to see robbie wiliams on Sunday and got back at 1.45am as a result I have been completely exhausted for three data and justcwantvto crawl into bed tiredness is my worse symptom I think although do get the pain as well .

[madddyyy]

I always tell people, the pain i can cope with, but this fatigue has gooten worse over last 2 years, or should i say not worse but, the good and bad days are now mainly bad. I literally now live in my bed, if i can relax i can have the next day shopping with wife for 1 hour, then its 3 days recovering.

My fatigue may have me also falling asleep and not knowing i am asleep, also because i am on morphine and other drugs its worse. I am now researching fatigue and how best to get my body to store and release energy via natural products and a combo of vitamins and health shop pills. But i saw somewere yesterday that fibro could be a problem with our bodys attacking us, and this is why the fatigue is happening. ( need to look this avenue of info futher ). I am currently taking manuka honey, selenium, and vit b6 complex, plus 1 aday multi vits. I am seeing improvement in mind and body and will atempt to tweak, plus i gave up cigs last year and lcohol 3 years ago. Also cut coffee intake to 2 cups a day and replaced with orange juice instead. Unfortunatley i think this mix of pills and diet and health will not help anyone else as we all have differing lifestyles and health so its not a cure for everyone but its good to have a blog of my own set to private and put down intake and meds and times taken and results.

[haribo36 in reply to madddyyy]

I just read an article on the pro health website today about a lady who has had fm for 24 years and she tried a high dose of thiamine or vitamin b1 and had drastic improvements to her fatigue.I might try this myself as I suffer with severe pain and fatigue.

[Malwimmy27]

Hi there I have awgul fatigue which is worse at work. I am really fortunate that my cjarge nurse allows me to go to our treatment room at lunch time to rest as this enables me to carry on until 8.45pm, otherwise I'd end up going off sick. I think certain levels of pain your body manages to learn to cope with, whereas the fatigue can become (or seem) more debilitating.

Becky.

[Kirby]

Yes!

I'm so glad it's not just me. I do get pain, especially migraines and menstrual cramps and other ones that rotate but they come and go whereas the fatigue is always there in the background. I have learned to pace myself around my fatigue. I get up late and then try and do most things between 12 and 5 pm. Then I hit a wall of fatigue and need to sleep. I tend to sleep between 6 and 7 pm (this changes, it used to be earlier) and it does fluctuate. Then I get another more alert time late in the evening so try and do stuff then too. But obviously if I have to do more taxing stuff especially travel or social I get more fatigued and need longer to recuperate. I also gat migraines if I am unable to have my sleep, so although i hate sleeping early evening, it's necessary. Also I've been keeping a diary and I now need to sleep every day, whereas it only used to be some days so it's definitely got worse.