Restless Legs: Hi does anyone suffer... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

Restless Legs

janlou profile image
15 Replies

Hi does anyone suffer from restless legs? This really gets me down, I cant get settled most nights I feel my legs have a life of their own!!!

Jan

Written by
janlou profile image
janlou
To view profiles and participate in discussions please or .
15 Replies

I am the awkward one I get restless arms ... Some nights I lie in bed shadow boxing fortunately I have great night meds and they zap me out so I get sleep so I have no idea if I am still wrestling with my arms.... I have no idea if it works but some people on here say a bar of soap in the bed helps.... As long as you don't tell anyone you have shoved a bar of soap down the bed you won't look silly trying it.....

Hopefully someone will be able to answer with an alternative if you don't fancy that

VG x

Sammicat15 profile image
Sammicat15 in reply to

Soap VG? Lolol chuckleworthy!! :-D :-D

in reply toSammicat15

Yup people have said it on here ... One of those inexplicable things that seem to help some people ... Also saves washing when you get up in the morning :)

Cookie72 profile image
Cookie72

Hi I get that often also body jerking, I take Gabapentin as wll as other meds and was told the Gabapentin is fr the restleg legs and nerve endings...I now also take magnesium as night that helps too, since taking the magnesium I havent had so many bouts ,try it, it might help, gentle hugs to you ...Dee x

rushbrook86 profile image
rushbrook86

There is a drug it is called pramipexole it is a drug normally given to people with Parkinson's but it is used in low dose for restless leg I know it works as I no longer kick my quilt off george

Sammicat15 profile image
Sammicat15

I believe Amitriptyline has the same effect as Gaba. I take both and am not as bad as I was, but am still not cured. It also depends how active I've been during the day.

Soap works sammicat lol. No idea why ! Not sure about restless arms though. I have a cloud pillow to stop my arms going dead. It keeps my neck in the right position so as to not aggregate cervical spondylosis.

jaov profile image
jaov

My dr gave me quinnine and it did help hope your legs calm down for you

nannyjenno profile image
nannyjenno

I have also got restless leg syndrome, for which i take ropinarole. Without it i think i would go mad.

Kernowc profile image
Kernowc

I too get restless legs and occasionally restless arms, I take Amitriptyline, have not tried the soap yet. I would love any ideas to help restless legs when traveling...5 hours on a train followed by an 8 hour flight to visit my grandchildren can be torture!

cazthecat profile image
cazthecat

Hi i also suffer from this condition and have been taken Ropinarole and it works very well

Niky50 profile image
Niky50

Hello - Just wondering if you take any codeine or opiate type medication during the day I was getting restless legs at night and finally realized it was from taking codeine in the morning and by night I was having withdrawal symptoms. I didn't take pain relief in the afternoon as my pain had improved and I didn't feel the need to take pain meds then.

Just a thought. Best wishes, Nic

tinkerfae profile image
tinkerfae

I get arms and legs. They gave me quinine but found that I'm elergic, I found diazapam with the gabapentin was working well til my new Dr stopped them n tried other stuff that nearly killed me!!!!! Sq anyone about on diazapam n gabapentin, if yes do u think it works let. Me know

I going to call Dr again today as I been snapping at everyone and feel like a lots of elastic strings pulling so

So tight¡¡¡¡¡ and I can't cope with it and have had thoughts of self harming or suicide, can't seem to enjoy anything think I will also try magnesium,

Blessings all,

Tink

janlou profile image
janlou

Hi thank all for the replies, I am seeing my GP this week.I take Amitripyline and that gives me a fairly ok sleep.Also drink indian tonic water that helps..

Jan x

pottyness profile image
pottyness

thank you all for this thread and thanks to jan for starting it. i thought i was going mad. i dont get restless legs i get a restless arm. just the one. my left. i sometimes wish i could have it taken off [though obviously i am aware that was nutts] i take my codiene at night so it cant be a withdrawal. i can only get relief if i take diazepam along with my usual cocktail of drugs for bed time... i will try magnesium. i am already on amitriptyline and i will discuss this ropinirole with my doc. thank you.

Not what you're looking for?

You may also like...

Restless legs

Restless legs how can I sleep though night

Restless legs

Has anyone found anything that helps with restless legs
Jessloo profile image

Restless legs

I get twitches in my legs. Mainly in the evening. I never thought it could be related to...
Suz23 profile image

Restless legs

I'm suffering with my legs and feet tonite never had it this bad before my calf muscles ache like a...
Jen1112 profile image

Restless legs

Hi fellow sufferers I just wanted to ask if anyone has suffered with restless legs. It only...
Paige1999 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.