lupus

[anbuma]

sent email to the rheumatologists secretary today along with photos of my face hands and stomach.

[charlii]

Do you have lupus? X

[anbuma in reply to charlii]

hi Charlii

I have some of the symptoms-butterfly rash on face,sores and swellings in hands and skin is bright red, scalp condition and nasal probs which I thought were sinuses could be a symptom -nasal ulcers- + painful arch in left foot

[anbuma in reply to anbuma]

my dr said he tested for lupus in december but he never told me that.it s now 5 months on .symptoms change ,as per usual says it s not something but goes no further.rheumatologists secretary away til 29th.cant do anything today altho a hot sunny day and no winds ,my fingers are ice cold.i managed to plant out some seedlings and have lots of bulbs/ seedlings in pots to transfer into garden.no housework done -making most of sunshine by spending time in garden-relaxing with dogs

[jillylin]

Hope you get some answers really soon.

Hugs

Jillyxx

[anbuma in reply to jillylin]

thanks,will let everyone know how tomorrow goes.

[charlii]

Yes please, do let us know how you get on. It sounds lIke you've been through more than enough already! Xx

[anbuma in reply to charlii]

got to hospital today and had scan which took all of 10 minutes but spent over 3 hours on buses to and fro. results take 2 weeks and I have a pre op cassessment appt on 6th june

[anbuma]

if it wasn't for people on here reassuring me and offering support and advice and proverbial hugs,I dread to think what state of mind I would be in ,i am so glad I have my two faithful (dog)friends to get me up each day and be there for me and for me to have them to care for

[Lizzywizz]

I suffered from discoid lupus from the age of 19 although was not properly diagnosed until my 30s! Then in my 50s, I got sarcoids (also auto immune) and went on huge doses of steroids. The lupus and the sarcoids went into remission but I immediately developed fibro and I am now 69! I worked normally until my 50s and was retired through ill health and now like everyone else, try to manage my lifestyle. I hope things go well for you whatever the outcome and 40 years on, I am still alive and kicking!!