Fibromyalgia Action UK
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seen a post ! BHMS/EDS as well as fm so who has these issues please let me know as i do!

i was told about a post by a member who suffers too and i am here to try help or to atleast be supportive and share notes as i was diagnosed 201r2 !

its been a verry long road and a very hobbly one too besides being a very bendy laaadaaay but now lucky if can dance with hands at the table as moves have walked out on me huh xxxxx

7 Replies


I have HMS and I have seen someone else post with similar problems.




I've got HMS. Just rather used to it now. Physio was hugely helpful in the past - I skied slalom at Uni despite HMS thanks to physio!


Hey moffy,

Nice to know another bendy lol

Well since I never knew that's what I had until last year as it has never been spotted but yes answers a lot of things that went on to an extent.

I always been very very flexible and had so much energy although now and again I be hospitalised not knowing the problem then get back up again and continue ,

It was a simple op that triggered events rolling to how I am now as prior I had many operations had 4 kids etc and was fine!!

So think my only answer I want is a surgeon to admit liability for the entrapment of nerves during surgery and not to know until 2 wks later after scans and being 999 to hospital for unable to move for pain or even stand being stuck in my bed and no one listening to me how bad things were .

I can handle alsorts of pain but knew it was wrong.

We get passed around so much.

No physio will help me at all they refused because of my neck ?!? Anyway I manage fine just want them to admit it then I can move on as the fight has already started win or lose I won't of given up for it :-)

The Mobility syndrome has been triggered due to it too .

So glad you have the help with physio though moffy.

Xxx I do go on and on and on and ariston haha


Hi , I have FM, and my GP has referred me for HMS my rhumy appointment is in June and I'm awaiting appointment at Chronic fatigue clinic . So don't know who diagnoses for chronic fatigue or if my GP says I have it , is that a proper diagnosis I don't know . Maybe the clinic will .


My neurologist diagnosed then referred brain specialist (physcologist)

Now waiting referral to pain physcologist as much as personally I don't feel the need as I am very independent and usually love helping others with things but I could not get my head round why all this was happening from a simple operation and I have done a fair bit homework and found that many things can trigger these issues.

I woke from my op with different pain from any other but it took over 2 wks to be heard!! Had to go back to theatre nerves were wrapped in the screws /titanium since then its snow balled was fine before that.

My Rheumy did not diagnose me or any other physio although they can do .

The HMS is on Breighton criteria and history and the skin type you have also.

I was told I had severe sleep deperavation (how a neurologist can tell that is hmmm)

Also I am member of groups that have our condition and I set up a small group as it is not really known about even Dr's have lack of knowledge.

I was born with and always had medical issues that this now accounts for but does not account for other things . Xxx

Please feel free to talk about it anytime joy


BHMS/EDS. Sorry, a bit thick today!! What are these please? XX


Benign hypermobility syndrome/ ehlors danlos syndrome it's a rare connective tissue disorder ,

Muscles & ligaments weaken easy also in other words we are very flexible too !

Benign Joint Hypermobility Syndrome: Evaluation, Diagnosis, and Management

MAJ Michael R. Simpson, DO, MC, USA

+ Author Affiliations

It's pasted wrong and if I go out I will lose this as on my phone xx

From the US Army Health Clinic in Darmstadt, Germany.

Address correspondence to MAJ Michael R. Simpson, DO, MC, USA, USAHC–DARMSTADT, CMR 431, APO AE 09175. E-mail:

Next Section


Benign joint hypermobility syndrome (BJHS) is a connective tissue disorder with hypermobility in which musculoskeletal symptoms occur in the absence of systemic rheumatologic disease. Although BJHS has been well recognized in the rheumatology and orthopedic literature, it has not been discussed in the family medicine literature. Because most patients with musculoskeletal complaints are first seen by family physicians, it behooves primary care physicians to be familiar with recognizing and diagnosing BJHS. When patients with this syndrome are first seen by a physician, their chief complaint is joint pain, so BJHS can be easily overlooked and not considered in the differential diagnosis. Use of the Brighton criteria facilitates the diagnosis of BJHS. Treatment modalities include patient education, activity modification, stretching and strengthening exercises for the affected joint, and osteopathic manipulative treatment.


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