Hello everyone, I'm sorry I haven't been here for a while but to tell you the truth I'm really, really struggling.
There is something very wrong but I can't put my finger on it
My arms and legs are developing more and more sores which are very painful and I have ulcers in my mouth and on my tongue. My glands keep swelling in my neck which makes it painful to swallow.
My trignemial neuralgia keeps coming and going which is driving me bonkers with the pain.
I am permanently exhausted and my body hurts so so much. I now shuffle slowly instead of walking and an old lady overtook me on Friday!!!!
I always have tried to push through the pain in the past and have coped but now I just can't, I've tried so hard but my body won't let me.
I feel so low because of all this and it's never ending. My hands and feet swell so that makes it hard to walk and use the laptop.
My hubby works in Canada and I can't tell him how poorly I feel as I don't want to worry him and my eldest daughter is away at uni but if she finds out she will come straight home which is the last thing I want.
I have made an appointment with my gp but it isn't til the end of the month so I will continue as I am for now
I'm sorry for moaning but just needed to tell someone how I feel.
Much love....Charlii xx
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charlii
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ring your gp first thing and ask for an app't, if they say there are emergency ones only, say it is - in this case "emergencies" are ones that mean a "today" app't, you can't hang on until the next day.
it might be a good idea to also keep the app't for the end of the month.
make a list of how you feel .and take it with you. let us know how you are Charlii..
I am so sorry for your pain, your situation sounds awful, I agree with the posts above...call your GP and do NOT wait until the end of the month. something must be available to help you feel better. Good luck honey xxx
The gp I want to see is in great demand due to him being just lovely so I would rather wait than go to someone else. I'm sorry for moaning, I feel very selfish when lost of you have more serious problems xx
Charli don't apologise for the way your are feeling, remember you are amongst friends who understand what you are going through. We may not have your exact issues at the moment but we understand the symptoms. Some times is does us more good to not keep "pushing through" and "getting on" as that in itself can do us more damage.
I know you want to see a specific gp because you have a good relationship with that one but phone the drs on Monday and see if you can get an emergency appt with that particular gp, if not still get an emergency appt that day and keep your appt at the end of the month as a back up if you are no better.
I'm sure that you are like me in that we don't go to our gp unless it is really really necessary, as we normally put the way we are feeling down to our FM. But sometimes you need to double check as it may be something that can be sorted quite easily (compared to FM, I mean) with an antibiotic or something else. Why suffer a whole month when it may not be necessary. You owe it to you to look after you! Like someone else said it seems nowadays that the emergency appts is now how you get a normal appt. I've learnt this first hand myself this week as have been really bad for past two weeks and have low blood pressure. I tried to book an appt for blood tests that I need done soon and was told that the earliest appt is 4 June with follow up at end of June. And yet there are people that use the gp surgeries as if they have revolving doors!
Anyway, back to you! A MUST - book emergency appt MONDAY! Keep the other appt at end of month, you can always cancel if things improve.
You have us all here to talk to and vent when required!
Michelle - have you the blood forms? if not, ask for them as a matter of urgency. You can go to the hospital blood collection or a local walk-in clinic.
I have something similar thats been going on for months now. After deciding its more than a flare up I booked an apt, it took 5weeks. Like you I have one doc I go to and I know its difficcult going to someone else you have to explain everything allover again! Now I have bloods booked for next week to start off with finding out whats wrong. What I think I am trying to say is, its a personal choice. How bad do you feel can you really wait that long to get things started? I wish I had gone earlier and not waited as I feel terrible. Thing is, well with me anyway is that I hoped she could do something for me there and then, but of course, its going to take time to get to the bottom of it, as symptoms are same as fibro! So more morphine and a waiting game. So, remember that bit when you decide what to do, its not just waiting for the apt, its the time taken afterwards for any tests that may need to be done? Phew, longwinded I know, but I hope I got my point across!? Going to have lie down now to recover from this essay!xx
Morning everyone, I'm new to this, I've had FMS and arthritis of the spine amongst other things since I was eleven am now 72, in those days it was diagnosed muscular rheumatism, then in 1995 they umpteen test and said is was FMS and that I have it in all our quadrants,it affects all the nerve endings too doesn't it and for the last three years it has started to affect my teeth giving me great pain, I have to use plastic cutlery as the metal ones make them worse and I can no longer go to the dentist as there metal tools Made it worse, when they first started I told them if they didn't help me or fid out why I had this terrible pain in my teeth I would throw myself thru a plate glass window it was that bad, I have many illnesses but this FMS I wouldn't even wish on my worst enemy, hi Charlie these people are right if u feel u can't wait then you must push them to see you earlier and don't let them fob u off u r the with pain and unless they have it they haven't got a clue as to what u r going thru,....sorry I have prattled on, wish I had thought of doing this a long time ago, I know none of can take the pain away but it helps to talk to people with the same complaint and know just what each of us are going thru, thank you to those who have been patient enough to read my epitaph lol God bless u all xxx
hi, ive been feeling the same, have fibro and osteo, feeling really bad no good days really tired and off it, have been mentioning to doc for a while, had bloods done , 1st lot came back thyroid borderline, still feeling bad so had more done, just back showing "inflametary markers" whatever they are and underactive thyroid, so hopefully i may get some answers, cant get any worse than i feel now. might be worth asking doc ....hope this helps xx
Thank you everyone for taking the time to reply. After reading your advice and a signs ticking off from moffy, I will be ringing the doctors In the morning.
The lesions are just as bad today with new ones appearing all the time and now a rash who it going up one arm.
Feeling what is normal for me this morning but this is what happens. I guarantee that suddenly at some point in the day I will feel really poorly again.
Going to slowly potter planting and tending to my greenhouse today as I've got seeds to plant and flowers to put in my baskets. I have recently got into growing my own with a lot of help from my best friend. She does everything I can't manage and I just potter about doing what I am able to that say and I must say that I'm really enjoying it. I didn't realise how therapeutic gardening can be. Xx
Thank goodness for that or you were going to get a stern pm from me next.... Settles for stern look .... Now you get yourself off to the GPS tomorrow .... Ps I love to potter in the garden very therapeutic
Your symptoms sound very similar to Lupus ones, which Fibro can be very similar & go hand in hand with. You need an a blood test for ANA & if that's positive further Lupus specific blood tests & a Rheumatlogist appointment.
Hope you get some answers soon & start to feel better. x
I agree - you need to see your GP like NOW - and just to make you smile while trying to get through..........after days of trying to get to see my GP, I finally flipped when the receptionist said "If you are an emergency, you need to ring at 8.30am to get an appointment the same day" I replied "If I am capable of calling you at 8.30am - I am not having a flipping emergency" She replied........"Er will 11.30 do....................." Fight on - we are all with you x
Hi just reading an interesting book FREE DOWNLOAD at Amazon Fibromyalgia Causes and Cures I'm sure you will want to try as it all makes sense Have a good day
I have had an appt this evening at my doctors and finally someone is beginning to take notice!
I have been to see a spine specialist who said I had a herniated disc in the T7 area of my spine.(the way I can explain this is, it is between my shoulder blades in my back and the pain radiates around to my ribs at the front of my torso). But because it isnt doing what they can treat IE: not touching the spinal cord or impinging on the nerve, She left me with the impression of it was a case of 'just get on with it'.
This made me go back to my GP and tell her how disheartened I was. Because, I thought,, finally I might be getting help.
Anyway this lead to my GP prescribing me with Lidacaine?? patches and an appt for a pain management clinic, because she finally, after 4 long years, she knows I have two types of pain to contend with.
To be fair to her she has had me on all the usual medication for fibro, but obviously she is not an expert on the condition!
So fingers crossed AGAIN that I might make a little progress in my treatment.
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.... Now you get yourself off to the GPS tomorrow .... Ps I love to potter in the garden very therapeutic 
The comfort of a new friend - a puppy - Happy New Year everyone!
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